Previous Thread
Next Thread
Print Thread
Page 2 of 2 1 2
Lizzy67 #131639 03-20-2011 07:05 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I found the neck dissection not bad. It's the affects of Chemo and Rads that create the problems in the neck and mouth. Or so it was and is for me. Good luck with it all and I pray you buzz thru everything you need.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #131757 03-21-2011 05:23 PM
Joined: Feb 2011
Posts: 5
Member
Offline
Member

Joined: Feb 2011
Posts: 5
Sounds like our diagnosis was similar. I had well differentiate SCC on left posterolateral tongue, no node involvement showed on scans. I had surgery just under 3 weeks ago, partial glossectomy and ND on left side. Post surgery showed that no nodes were involved and despite that I'm glad the ND was done as for me chances of it having spread were high enough and I would have been worrying a lot about what if. So far I would say the worst part was being in the hospital as I have a hard time with taking it easy. Now I'm just trying to get used to the numbness.

The day after surgery I was walking around my floor of the hospital, albeit hunchbacked a bit as my shoulders/neck were very stiff. I was in the hospital 5 days and that was mostly because they were waiting for the neck drains to be able to come out.

When I got home I couldn't move my head around much but I started to stretch it out. My shoulder/neck are still stiff on that side (under/between shoulder blade) and I don't have full turning range of head but it's doesn't keep me from doing what I want. I still have some swelling in my chin so I feel as that goes away and with more stretching/massage I should be able to get most of my range of motion back.

I am not able to sit still for long so after making sure it was ok at about 1.5 weeks out I was able to go hiking and mountain biking. Then 2 weeks out I was able to run and since then have been on some trail runs with no ill effects. My speech is practically normal and I am back to eating most things just takes a lot longer. So in the end not all that bad.

Claire S #131784 03-21-2011 11:08 PM
Joined: May 2010
Posts: 224
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: May 2010
Posts: 224
I am sorry to read of your situation but glad you found this forum. I was stage 3 and had a whole bunch of more issues, so I had to have neck dissection as one of my lymph nodes lit up on scans, and came back positive for cancer.
ND isn't bad, and lucky for you they caught it really early, so you shouldn't need to worry about rad or chemo. Rad was far worse for me then the surgery ever was.
I wonder if they tested for HPV on ur biopsy though? If they didn't mention it, maybe it would be good to ask them. Cuz if you don't smoke, lightly drank, unless ur family members of your past have had oral cancer, or skin cancer, it could possibly be caused by HPV, and if it is caused by HPV, less likely to come back, but not impossible. Just a thought.
I know how scared you must be, but once you go through surgery, you will be happy you did and will adjust to the changes and have a whole new appreciation for many things.
I will keep you in my thoughts!!


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
Page 2 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,924
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5