| Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | As i was told, oral cancer does not have any blood "markers" the way some cancers do. Your report sounds VERY similar to mine. When I was first diagnosed one person told me it was moderately differentiated and the other said it was poorly differentiated. I think the first one was just trying to keep me from completely freaking out - but what they didn't realize was that I had already done that when I heard the word Cancer.
One step at a time. At this stage it is impossible not to think about it every second, but if you can - try not to let Cancer steal every day of your weekend. It will already get more days that it deserves. Try - if you can - to push it to the back of your mind. You have done everything you can now it is your time to go out and eat anything you want (a few extra pounds going into surgery/treatment is a good thing), spend time with those you love and enjoy the beauty of nature.
Once you start treatment you will feel significantly better mentally. Actually DOING something is a comfort vs sitting and waiting.
Look forward to hearing about your Monday results.
Donna
Last edited by Pandora99; 03-17-2011 08:50 AM.
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2011 Posts: 117 | sounds like you are in good hands (medically) and have found this board for mental support.... take everyone's advice -- they have been thru the worst and then some... and do try and put it out of your mind a bit for the next few days. Sending you best wishes, good healing vibes and prayers. Ingrid K
DX 12/6/10 of T3 SCC Tongue. Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear. Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | Hi, For what it's worth, I've been told that a lesion can be viewed different ways. That is why when you get a second opinion from a different cancer center (or more) they always insist on seeing your slides so their pathology dept. can have a go at it. I had mine viewed as moderately well diff. & well diff. (from one place), Then it was labeled "superficially invasive" by another, and then I was faced with a metastasis to a lymph node, called met. rather than reoccurence because it happened within about a month of the biopsy excision! My last stop called it "moderately well", and the lymph node a met. because there was no cancer left in my tongue when they recut. I am no expert, but I would say that judging the histology of the lesion is at least partly the decision/view of the particular pathologist. I am also sure that they try to quantify it as best they can to take some of the opinion of out it. (there's hedging an opinion for you) Anne
Last edited by AnneO; 03-17-2011 06:37 PM.
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
| | | | Joined: Mar 2011 Posts: 21 Member | OP Member Joined: Mar 2011 Posts: 21 | Just a quick note to everyone who responded to me or just read my message.
Thank you, from the bottom of my heart. As you know this is the most confusing, terrifying, gut wrenching time - not knowing what is going to happen and not having many answers.
I was diagnosed with MS 5 years ago and didn't think anything worse could happen to me. Wrong...
You are all angels who have helped ease my mind and spirit.
Thank you again. God Bless you all.
Gail | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Gail, Welcome to the forum. You have come to the right place and sounds like you are going to be in good hands. everyone here is so helpful and encouraging. Let us know how the appt. goes on monday. Will be thinking and praying for you.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Mar 2011 Posts: 21 Member | OP Member Joined: Mar 2011 Posts: 21 |
Just got back from Yale. After Dr. Sasaki examined me and took a chest xray, he presented my file to his team (16 other specialists).
They recommended surgery to remove lesion and then taking skin from my wrist to graft to my tongue, then chemo/radiation.
He said it shows no signs of spreading.
Wonderful hospital and team. They all came over to me to take a closer look at the lesion and each one squeezed my hand before they took a look. That meant a lot to me. | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Dec 2010 Posts: 291 | Gail, That sounds good. I take it you've had all the scans--PET, C-T to find neck disease. And you don't need more surgery then?
I hope it all works out for you. Lots of us have had those treatments.
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA GIST tumor sarcoma, removed 9/2011, no chemo needed Clear on both counts as of Fall, 2021
| | | | Joined: Mar 2011 Posts: 21 Member | OP Member Joined: Mar 2011 Posts: 21 | He said it was caught very early - had no signs of neck disease. He said I was lucky I had an earache or else I might have ignored it - like some people do for years. Will decide on other scans after the surgery before radiation/chemo. | | |
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