Previous Thread
Next Thread
Print Thread
#1307 06-16-2003 10:13 AM
Joined: Nov 2002
Posts: 33
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Nov 2002
Posts: 33
Dear Friends

My Mum has been told she has a condition called Sub Mucous Fibrosis inside her cheeks. It is has started to restrict the opening of her mouth in that she can just about put one finger in her mouth. Mum's consultant says that it is a irreversible condition once it has started and the only thing to do is for Mum to do mouth opening exercises, which the speech therapist has shown her. He also alarmed us by telling her that there is a very high risk that it could become cancerous and therefore he needs to see Mum every 4/6 weeks to check on it.

Has anyone here on the board suffered with Sub Mucous Fibrosis? And would you please share your experience with us?

Thanks

Love and Prayers for you all.

Kathleen.

Carer of my Mum: Diagnosed with Tongue Cancer in November 2002, surgery to remove nearly all of tongue in January 2003 and also radical neck dissection to remove lymph nodes at same time.

Anonymous
Unregistered
Anonymous
Unregistered

Hi Kathleen,

I can only tell you about my experience after radiation. There is a condition called trismus that develops from radiation. I can not remember if your Mom had radiation or not.

I do have trismus and I am down to only getting one finger in my mouth. I am going to go back to physical therapy (someone that specializes in TMJ, since this is similar therapy) and hope they can get me back open to 2 fingers again. Noramlly a person should get 3 fingers in.
Ah! Radiation - the gift that keeps on giving.

Please do a search of the site, also the message board and you will find information about trismus.

Take care,
Dinah

Joined: Apr 2002
Posts: 73
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Apr 2002
Posts: 73
I encourage your mother to do the exercises. I just saw a speech and swallowing specialist yesterday and she said that even though I am 2 years after treatment that its not too late for me to resume the exercises and make additional progress.


ilene
SCC stage 1 1987, 1/4 of tongue removed, neck dissection, SCC stage 3 2000, another 1/4+ removed second neck dissection, radiation.

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5