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#130858 03-07-2011 09:26 AM
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joucads Offline OP
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Hi everyone,

I just received my result for my biopsy and MRI scan. Though my biopsy shows that my ulcer is non cancerous (2 biopsy report: 1 shows severe dysplasia and another inflammation) but my MRI scan reveal that there is something penetrating my tongue. The doctor advise me to go for surgery to remove the ulcer and will further examine it for cancer. I am wondering normally for this kind of surgery, what is the success rate? and is it a complicated surgery? What other options are there besides surgery?

Thnks.


joucads

DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
joucads #130912 03-08-2011 09:33 AM
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I think that depends on how much they are planning to take out - if its a small area the tongue heals quickly so it shouldn't be too bad - if it's a partial or hemiglossectomy - with a rebuilt area - it's a pretty big surgery - mine was 10 hrs - but they also did a neck dissection - you need to ask them more questions - find out what they are planning to do - I'm glad the are offering you surgery - i had 2 negative biopsies - before a 3rd diagnosed me - better to be pro active than reactive. I'm 4.5 weeks out of surgery and doing well. Best of luck and let us know what is going on.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #130916 03-08-2011 10:01 AM
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Your doctor should be able to answer your questions about the success rate. I would think it depends on many things including the individual along with the skill of the surgeon. A second opinion with another surgeon wouldnt hurt. Surgery is the only option for something like this, or watchful waiting. You wouldnt go thru radiation for something other than cancer.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #130920 03-08-2011 10:22 AM
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I would think that if a biopsy showed no cancer, then I would tend to listen to it and get a 2nd opinion.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #131477 03-17-2011 07:09 AM
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joucads Offline OP
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Hi,

Have done the surgery. Recuperating at home. Initial finding is chronic inflammation. Will wait for 1 week to get the final result.


joucads

DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
joucads #131481 03-17-2011 08:43 AM
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Very happy to hear they have done the surgery and will have the actual tumour to find out what is going on. Praying for clean results.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #131487 03-17-2011 09:35 AM
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Me too - glad the initial results are positive, and you are recovering - I do need to say - I had two negative biopsies before my last positive one...even if it is negative for cancer keep a very close eye on it and if it does not heal or recurs get someone to look at it right away - best of luck!

Last edited by Cheryld; 03-17-2011 09:38 AM.
Cheryld #131497 03-17-2011 02:11 PM
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Did they remove all the severe dysplasia along with the ulcer? My first excision after biopsy was to remove carcinoma in situ but they didn't get all the severe dysplasia so I had to go back in a few months later for a more extensive excision (partial glossectomy but not neck dissection as PET scan was clear).

Glad the initial results look promising but as everyone else has said- keep an eye on it! Good luck!!


Catherine, SCC floor of mouth DX 2010,unclear margins, PET scan clear, no chemo or rad,biopsy in 9/2010, 2nd excision 10/2010 didn't get all carcinoma in situ; partial gloss & excis. right floor 2/2/2011 margins clear. Part.gloss-10/5/2011 sev dys clean marg. HPV neg. Don't smoke or drink. SCC floor of mouth left side 4/2016. Dysp excis. rt palate 7/2017 Part gloss sev dys lat marg 2/2019 Part gloss free flap rt neck disc 5/2020 Part gloss bilat neck disc 7/2020 33 rad 3 cis.
cbhh #131852 03-23-2011 05:57 AM
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joucads Offline OP
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Hi,

I got the final result. The result shows that I have a 2mm cancer in the tongue. But the doctor is unable to find out the exact location of the cancer. I am puzzle, Is it possible not to know where the cancer is? I am to do another surgery to get a wider margin and shave more of the tongue for further testing. If more cancer is found, then radiation is needed.

Emotionally, I am drained and a blank. Since I was told that it is inflammation so my expectation is that I would be cleared. Yet, the report prove otherwise. It has been a blow that is totally unexpected.


joucads

DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
joucads #131865 03-23-2011 07:33 AM
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I know exactly how you feel. - my past few days have been brutal. Its ball in another post so I won't go into it. If it came back scc then I am assuming they are thinking there's more there but not in the form of a visible tumor. Have they looked at your neck.. ? It's a very small tumor but I would have them check your neck and keep an eye out for swollen lumps in your neck. Get to know-how your neck feels - what's normal and what's not for you. Rads is not fun but likely insurance.

Best of luck! You are being seen at a cancer center right?


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #131921 03-23-2011 10:00 PM
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joucads Offline OP
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Hi,

Yes, I am being seen in a cancer center. The doctor explained that there is a 5% chance that it will affect the neck as it is a 2mm size cancer. So they won't need to remove anything from the neck.

I am wondering.. is it common practice to have a second surgery for wider margin? I am worried about doing the second surgery.

Last edited by joucads; 03-24-2011 12:48 AM.

joucads

DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
joucads #131936 03-24-2011 08:30 AM
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Well if they don't get wide enough margins then it's best to go back in and remove more, not sure but it shouldn't be any better than the first and its small so it should heal quickly. Best of luck,,,


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #132397 04-02-2011 12:12 AM
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joucads Offline OP
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Hi,

I have done the partial glossectomy. My margin is all clear. Now praying that there are no recurrence. Currently, having difficulty in speaking and swallowing. But doctor say it will recover by 2 weeks and speech will improve by 2 months.


joucads

DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
joucads #132432 04-03-2011 06:26 AM
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My initial SCC was on the floor of my mouth on the right. The ENT didn't take sufficient margins and they did a resection a couple months later including a partial glossectomy after discovering a second SCC on the side of my tongue.

My surgeon said that with cancers of 2mm or less that have not entered the nerves there is minimal occurance of spread to the lymph nodes. Still, as Cheryl says, become familiar with how your neck feels and let your doctor know if anything feels unusual. My surgeon also is having me keep a close eye on my mouth. Any new areas that are red or white for periods longer than two weeks need to be looked at by a professional.

Best of luck!!


Catherine, SCC floor of mouth DX 2010,unclear margins, PET scan clear, no chemo or rad,biopsy in 9/2010, 2nd excision 10/2010 didn't get all carcinoma in situ; partial gloss & excis. right floor 2/2/2011 margins clear. Part.gloss-10/5/2011 sev dys clean marg. HPV neg. Don't smoke or drink. SCC floor of mouth left side 4/2016. Dysp excis. rt palate 7/2017 Part gloss sev dys lat marg 2/2019 Part gloss free flap rt neck disc 5/2020 Part gloss bilat neck disc 7/2020 33 rad 3 cis.
cbhh #139445 09-07-2011 08:01 AM
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Hi,

It has been almost 6 months. I have since recovered from the surgery and can now eat and talk normally. Still going for check up every 1 and a half months. Hopes everyone is doing fine. Keep rocking!! smile


joucads

DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
joucads #139456 09-07-2011 12:18 PM
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Great news, joucads! Thanks for the update.


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Maria #139498 09-07-2011 09:23 PM
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That's awesome I'm so happy for you! Keep going!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #139507 09-07-2011 11:17 PM
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Hi Joucads, good to hear from you that you have been free so far. Don't become too easy and stop going for regular checkup as you had a close shave. Also, discuss with your doctor regarding PET-CT scan in maybe 3 months from now.


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
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