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#130825 03-06-2011 09:31 AM
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ceazar Offline OP
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My father went through his first chemo and home with a pump of 5-FU and now I know why they call it 5-FU! He did well the first few days then they took the pump off and gave him a shot of something called Neaulstae? To increase his WBC count, they said he would hert all over and he sure did. He also is nauseated and vomiting. So for two days he hasn't been able to eat anything but bits of this and that. I told him it is time to use the tube. He has 12 days until his next chemo, go home with the pump agian and of course another shot. Can I expect he will feel like this agian and do the Dr.s lower the dose based on how you felt the first time around. He felt good before all this started and I hate to think that this treatment will be what ends it. Loving daughter-


Ceazar

Father 66yrs
S4 SCC left BOT
DX Jan 2011
X-smoker
Peg 1/31/11
chemo Cisp, 5fu, tax
Heart attack 3-17-2011
7 Weeks Rad with erbitux
Peg out Aug 2011
Pet Sept 2011 good (no activity)
Pet Dec 2011 tumor hot
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Posts: 551
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Ceazar,

Does your Dad have anything for the nausea? If not, he should call on Monday and have his docs prescribe something. The chemo dose will not be lowered (it wouldn't be effective if it was) but the side effects can be managed. I had to try a couple of things before finding what worked for me, kept hydrated (which is surprisingly important for nausea) and was fairly nausea-free once we had the right course worked out. If you can get him to use the tube at least for hydration that might help for the time being.

I think the pain associated with the Neulasta should minimize with each dose.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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My docs told me to take Claritin for the pain...they can't tell you why it works, it just does. It dried up my sinuses too much though! I was very, very lucky that I had no nausea whatsoever from the chemo. Took the anti-nausea meds and they worked like a charm!

Cathi


57 when diagnosed. Heavy smoker. Social drinker. Diagnosed 7/9/09 with tonsil, tongue & neck cancer. Chemo induction (Cisplatin, 5FU & Taxotere) & 35 radiation tx + 7 Carboplatin.
Head and neck CAT scan on 1/15/10 shows no cancer.
1/27/12 First PET/CAT scans in 2 years - All clear!!
recurrence mid-2015
OCF supporter and avid OCF CO and NJ walk attendee with worldwide friends

*** 1-7-16 passed away unexpectedly ***
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Anyone on these forums will tell you I'm a big advocate of medical marijuana . No matter what the preconceived feelings or bias this drug may bring, its hard to argue its effectiveness. Mj will ease pain, give a sense of well-being , ease nausea and with the added benefit of making you hungry. No known drug interactions or cases of overdose (to my knowledge). I believe the stigma the general medical population has with it is the barbaric delivery system of smoking it. Vaporize ...takes care of that issue .

No matter what the thought of Mj is, its just a tool, like the other harsh drugs a cancer patient has to use. If its legal in your state ask your Dr about it. If not, ask your stoner friend and don't get caught smile


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
Joined: Jan 2011
Posts: 23
ceazar Offline OP
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Posts: 23
Thank you everyone for your input it means alot:) He is taking compazine not my drug of choice so I called the Dr. and asked for something else they gave me zofran that melts under your tongue. I put carnation instant breakfast through his tube because the ensure smell makes him want to vomit. I taked with him a bit ago and seems to be much better than this morning. He also needed a spirit lifter, He hates feeling so helpless like a baby he stated. I wonder how the next TX will be? the same or worse? He used to smoke MJ years ago and I had a friend ask me about it, I'm sure he would if it was available. Dr's probable don't offer it you probably have to ask? Thank you all soo much and Smile because spring is on its way! something to look forward to instead of this thing called Cancer. whistle


Ceazar

Father 66yrs
S4 SCC left BOT
DX Jan 2011
X-smoker
Peg 1/31/11
chemo Cisp, 5fu, tax
Heart attack 3-17-2011
7 Weeks Rad with erbitux
Peg out Aug 2011
Pet Sept 2011 good (no activity)
Pet Dec 2011 tumor hot
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Any friends in California? Even the Mexicans sell that type.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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