| Joined: Feb 2011 Posts: 8 Member | OP Member Joined: Feb 2011 Posts: 8 | Great news! All went well with todays procedure. The doctor did not find anything new today. As our doctor put it, things were "clean as a whistle". so there was nothing new to biopsy. There were no surprises so the only thing we have to deal with is the 3 cm SCC tumor in the mouth.
Oncology appt on Monday followed by Radiation Oncology appt on Wed. We are beginning to see progess instead of just waiting.....
I have made a binder to keep my my medical notes, calendar and doctors information organized and in one place. It has been very helpful and it has given me a sense of control over a situation that I have little control over.
This forum is a wonderful source of information. I am very happy I have found it at the beginning stages of our long journey.
For those that asked..... Brian is being treated in Santa Cruz, CA. ENT - Santa Cruz Radiation - Santa Cruz Radiation Oncology Oncologist - Santa Cruz, have yet to meet them.
Thanks again for sharing your stories, knowledge, and experience.
Gianna
spouse of Brian Diagnosed SCC 2/8/11 Waiting on radiation therapy and still waiting to meet our Oncologist.
Spouse of Brian Brian diagnosed with SCC Feb 8th, 2011 Cisplatin 2X , 35 RT, 3 cm tumor in mouth, swelling in node HPV Positive, Non Smoker, moderate drinker, Age 52 | | | | Joined: Feb 2011 Posts: 8 Member | OP Member Joined: Feb 2011 Posts: 8 | Great news! Hubby went to surgery today for euroscopy and no other suspicious tumors were found, so no more biopsies needed. Dr said his larnyx was "clean as a whistle". The only issue is the 3 cm tumor in his mouth that was diagnosed as SCC. Meeting with the Oncologist on Monday and the Radiation consultant on Wed.
I am glad I found this forum users group so early in my journey. Thanks for sharing your wisdom, experience, knowledge and friendship.
For those that were asking, we have an oncologist in Santa Cruz, CA and Radiation therapy will be done at Santa Cruz Radiation Oncology.
Gianna
(second attempt at posting this, dont know why my other post did not post. possible duplicate? ) ________________________ Spouse of Brian Diagnosed with SCC Feb 8th, Meeting the oncolgist for the first time on Monday Radiation consultation on Wed.
Spouse of Brian Brian diagnosed with SCC Feb 8th, 2011 Cisplatin 2X , 35 RT, 3 cm tumor in mouth, swelling in node HPV Positive, Non Smoker, moderate drinker, Age 52 | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Welcome - everyone here is fantastic and knowledgeable - if you have questions someone here can answer - take care and many blessings yto you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Feb 2011 Posts: 14 Member | Member Joined: Feb 2011 Posts: 14 | Great news! Keep up the faith, and good luck. I'm sure you will keep us posted.
Letitia Baker mother of beautiful 26 year old daughter who is my best friend. Squamous carcinoma Stage 1. T1N0N0
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | That's good news, Gianna. Please let us know as soon as you know more.
Courage! David2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Feb 2011 Posts: 4 Member | Member Joined: Feb 2011 Posts: 4 | i,m a newbie to just wanted say this site is great, my husband had cancer on his lip had surgery doing radition and chemo ,he has 14treatments of radition today. can,nt spell to good lol welcome to this site love and prayers gerry | | | | Joined: Feb 2011 Posts: 6 Member | Member Joined: Feb 2011 Posts: 6 | Please be encouraged. I went through a similar regime. 35 radiation, 7 Chemo for SCC stage 4on my tonsil. I am 13 months out without any signs of anything unusual. My schedule is now check ups every other month after 1 year of monthly visits. It's a journey, but this site appears to offer incredible support from sincere people having experienced a similar journey. Deal with each day at a time and recognize that there are many survivors having been where you are.
Blessings to you.
35 radiation txs. 7 cistplatin. SCC on tonsil and 2 possible nodes. 14 months out and holding the line. Just graduated to ENT visits every other month. Life just seems to keep on happening with or without you.
| | |
Forums23 Topics18,168 Posts196,925 Members13,103 | Most Online458 Jan 16th, 2020 | | | |