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Joined: Feb 2011
Posts: 1
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Joined: Feb 2011
Posts: 1
Hello,I am DixieBlu~ I am the daughter that lost a father to cancer~Although he lived 19yrs without his voice..
I watched and learned so much from him..We were like Peas and Carrots..Jan 2007 that ugly word came back into our life,he turned 68yrs 9-11-07 and went home 11-11-07..and thats all i will say about that..
I had to seek help after because i could not del with him gone!
Just when i think i have my life in order-Bam! 12-16-2010 my stepdad had to have his voicebox removed and his whole tounge..
I went to him right away because i knew my mother would not be able to handle it...We start R/C next week and he is only 117 lbs..I know what im up against-been there done that with my dad...But how do you find help for my mother who says she cant deal with this?~Any advice would be great.

Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
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"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Hi and welcome DixieBlu,
You have found the best site for getting information, support and encouragement for your step father and family.
There are others here who are better qualified to answer your question. Some would be those you may have read posts from on the Caregiver / Co-Survivor Forum here.
Wishing you well finding help for your mother.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Welcome to OCF DixieBlu. There is alot of important info on both the forum and also on the main pages. Gabe is correct that there is alot of support here under the caregiver tab. Your mother can also seek out her own therapist. Another idea is to check with the place your stepfather is being treated. Some large facilities have great programs to help cancer patients and their caregivers.

Best of luck with everything you are facing.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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