| | Joined: Feb 2011 Posts: 10 Member | OP  Member
Joined: Feb 2011 Posts: 10 | As you can see from my signature my diagnosis is MEC not SCC.
Does anyone know anything about this diagnosis? I can't seem to find anyone who has any experience with this situation.
I've been able to find that MEC is in the third group of types of tonsil cancer, but little else. It appears that my situation is a least RARE.
My doctors say the treatment regime is the same as SCC, but admit that information is limited.
Any information would be appreciated.
Len
MEC of left tonsil; MET to left lymph node;HPV16+; tonsillectomy 1/21/11;DX 2/2/11-T1N2M0-Stage IVa-High Grade;TX tentative for 2/21/11; 35xIMRT,3xCisplatin Age 65,smoker until 2010; married to the same wonderful woman for 42 years. 1 daughter and two granddaughters, avid golfer and model railroad.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | There are several members who have had this form of cancer. Im sure you will hear from someone soon.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2011 Posts: 10 Member | | OP Member
Joined: Feb 2011 Posts: 10 | Thanks Christine, but I'm yet to find on any forum, someone else who has been diagnosed as having MEC of the tonsil. MEC yes, but not of the tonsil. SCC of the tonsil yes, but not MEC.
I've found literature referring to MEC being a possible cause of tonsil cancer, but little else. My diagnosis appears to be RARE and possibly VERY RARE.
I hope you are correct about someone posting some information.
MEC of left tonsil; MET to left lymph node;HPV16+; tonsillectomy 1/21/11;DX 2/2/11-T1N2M0-Stage IVa-High Grade;TX tentative for 2/21/11; 35xIMRT,3xCisplatin Age 65,smoker until 2010; married to the same wonderful woman for 42 years. 1 daughter and two granddaughters, avid golfer and model railroad.
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Hi Len!
Sorry I'm late in replying but I had MEC. Mine was in the salivary gland, right tonsil and base of tongue, basically oropharynx region. PM if you have any questions, not sure how much help I could give you but I'll try.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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