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Joined: Feb 2011
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Madsdad Offline OP
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My wife had prolonged hoarseness and the ENT said she had a lesion on her vocal cord and recommended removing it. We did and just got the biopsy report today that confirmed she had SCC in situ. The ENT originally thought it was a papilloma from sight, and it was also confirmed P16. He said that since it is stage 0, observation is considered an acceptable plan of attack but wants us to meet with a radiologist just to be better informed in case we want to treat it with radiation. We were hoping some members might be able to share some opinions on the pro/cons of radiation at this stage and also might have some insight if a general ENT would be able to observe the area sufficiently, or would it be smarter to find an ENT that specializes in oral cancer? Also, can one observe the area with the microscope down the throat, or do you need an MRI every once and awhile? Please excuse my ignorance, as all of this is new to me.

Thanks

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Hi Madsdad,

I'm glad you've found this site, i found it to be so helpful when i was first diagnosed. I would highly recomend going to an ENT that specialises in cancer. You'd want someone who have done this operation lots of times before.

Minh


35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
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I would recommend that you take the path report and the slides to a CCC and get an informed recommendation. We are not oral cancer docs here and SCC is not to be taken litely.

CCC's

http://www.oralcancerfoundation.org/resources/cancer_centers.htm

BEST CANCER HOSPITALS

http://health.usnews.com/health/best-hospitals/cancer-hospital-rankings/



David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Take it from someone who presented originally with what seemed to be small and easy case: don't take anything for granted.
It may be that she can be oberserved closely and that will be acceptable, but, perhaps not. I echo the other comments you got about getting to a specialist who has dealt with this type of cancer many times.

What you do now may determine how this disease will ultimately affect your wife, and yourself, in terms of curability.

Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
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Madsdad- I presented with the same thing carinoma in situ when my journey began. I went for a year and half just having checks and have papillomas removed. I had 5 or 6 surgies during that time. By a fluke I was sent to see a speech therapist who noticed when magnified my tonsil looked strange and I ended up having cancer in my tonsil. After removal of my tonsil that has ended growths around my vocal cord.

The standard practice is to watch you and if more papillomas/growths develop then look to radiation. You can only have radiation in an area once (there are some variations to this too but that is what they told me) so you hate to waste radiation if it has only occured once.


Squamous Cell Carcinoma- Right Tonsil January 2008 T2N1M0
35 at Diagnosis
30 IMRT Radiation Treatments and 6 Cetuximab
Finished May 2008 Jeannie

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