Hi Helen

Thank you so much for your post..I am in tears right now with the support I am receiving from people I don't even know..what a wonderful world it is!!

My surgeon seems to think it could be a scar nodule..pray to God he is right but that doesn't mean I am not beside myself. I find my thoughts drifting to areas I don't even want to comphrehend..bugger this disease..I hate it so much!!

It is so great to see you are a long time survivor!! Congratulations! I love seeing so many people actually survive this illness...gives me hope.


Anyway, thanks for your support..I am so gald I joined up!!

Take care Helen

Liza :-)

Hi there, welcome to the group, but sorry you had to find it.
I too was told I had lichen planus on my tongue, but I know mine was a misdiagnosis. they gave me antifungals that almost always clear it up and it did nothing and when they finally biopsied it was stage 3.

I know how the waiting game is and how it feels to hope someone is right. My most recent scan showed new borderline hypermetabolic activity on my lower jaw, and doc isn't worried, doesn't even want to biopsy as it's "borderline" and "hypermetabolic activity" can be soooo many different things. So I try to not let it bug me and just go with what he says, but parts of me just want them to biopsy for peace of mind.

I will keep you in my thoughts that your biopsy comes back negative and that it is just scar tissue. I know i have a few lumps and bumps that are scar tissue, but they were from surgery and radiation, so I will pray that that is what yours are too!!

I agree that you can't be positive all the time, and i feel it is also ok to let yourself fall apart, but I have only allowed myself so much time to fall apart and then pull myself back together. Can't be strong all the time, those that can, I just don't know how!!

You are doing an amazing job fighting this, keep it up!! Live each day to its full potential and try your best not to let the anxiety and worry take over your day!!

Hi Liza,

Hopefully all is good (from a fellow Aussie, Sydney!) and I'm glad you found OCF.

I had tonsil pillar cancer and a rad Dissection, plus radiation 7 years ago. The radio gave me a bit of a run-around, with scar tissue in my throat. Have recently had 2 gastroendoscopies with dilation and it is so goo to be able to swallow much better! I mentioned to my surgeon about a lumpi I could feel in my neck where the secondary tumour was removed, so he checked while I was under GA. Luckily it was only the Atlas poking through what remains! Phew! I hope you're as lucky as I am ;-)!

Cheers!
Meredith (who will be over in WA sometime to soon to visit my uncle who just had a shunt put in his brain (he has frontal lobe pressure and hopefully this op will help him walk again!)

Hi bethers0808 (sorry don't know your name) and Meredith,

Thanks for the welcome and for the positive comments. bethers 0808, my lesion started when I bit my cheek really hard about 2 and half years ago..saw an ENT doctor who was not too concerned. The lesion kept coming and going until about 2 years later when it stopped healing. Saw my dentist who referred me to an oral surgeon and he diagnosed it as Lichens Planus. Got given steriod creams,they were useless and steroid injections which cleared it up for a while but then I noticed the pain had changed. Finally had a biopsy which came back positive for SCC (a day that my life changed).I appreciate your comment that I should be allowed to fall apart!! How can one remain composed all the time when you are fighting this battle? Wish I could but falling apart actually releases a bit of stress and tension for me and boy I seem to be very stressed lately!!

Meredith, nice to meet a fellow Aussie.Congratulations on being a long term survivor...like i said in my above post, it gives me hope. Praying hard that my tests are negative!When are you coming to WA? Are you coming to Perth? Hope your uncle gets better and the shunt works.

Wishing both of you a very nice day :-)

I just got a phone call that delivered me the worst news ever. My cancer is back and its in my neck where they did the biopsy. Having a PET and CT scan on Friday. I am absolutely terrified. Looks like I have to have surgery, radiation and chemo. How am I going to cope..can someone please give me some advice because at the moment I just want to run away somewhere and hide. And plaese pray for me.

Liza

Liza, Im so sorry!!!! I am praying for you. Im so glad you have become a member of OCF so you have so many people helping you to deal with this. You have gone thru this once and now you must do it again. It can be done but its not easy especially doing radiation.

Right now try to eat all you can without worrying about calories. Eat all your favorites, its ok to gain a few pounds. Your eating will be changed for a while. Dont worry about this, its only temporary.

I will keep you and your family in my prayers.

Liza, I am so sorry that you are going through this again. I will certainly keep you my my prayers. We are here to support you! Be strong and try to have faith. Like Christine says eat all you can and enjoy!! no guilt!

Liza,

There are many of the members on these forums that have survived multiple recurrences. Charm and Christine are two who I look to as examples that one cannot only survive a recurrence but really live afterwards.

It's understandable that you are afraid, however know that we are here for you as you go through this. You can do this thing. You are in my prayers my dear.

Keep your chin up

Eric

Having it caught early is half the battle and it sounds like you are right on top of it - so all good! You can and will get through this and there is life on the other side. Just remember that you can get through anything if you close your eyes, and that we are all hear to walk each step with you.

Donna

Sorry to hear that it came back as cancer, but you are a strong woman and you will get through this. I know it's tough, but you can get through this. You can talk to your docs about depression and anxiety meds as they will help you through this, I was put on them from day one when i was diagnosed and it helped me. I will keep yu in my thoughts and hope for quick recovery.