| Joined: Jan 2011 Posts: 2 "OCF Canuck" Member | OP "OCF Canuck" Member Joined: Jan 2011 Posts: 2 | Hi everyone....i am new..and am sooo happy to find this website..so much to talk about...first..Thankyou to all of you who are willing to share and help me...there is not much here in Alberta Canada...and its great you are all here for the same reason..support and information....i look forward to our future chats...my surgery was last April..i had a partial dissection of 3/4s of my tongue, my donor area was my left arm and thigh...so far so good..have another checkup today...will keep in touch. Karen N | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Karen, welcome. So glad you found this place - I felt the same way when I first discovered it. The people here are amazing. Glad everything is going well, and please tell us more!
David 2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Hi Karen,
Welcome to the group..so glad you found us.
To keep from repeating your medical history..please go to the top of the page..under "My Stuff"..."profile"...all the way to the bottom under "Signature" and fill in your information with timelines, etc. See my signature at the bottom...you can use any format you want. That information will help us answer any questions you may have and let us know where you are at.
We look forward to your posts!
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF, Karen. Hope you are doing alright with your recovery from the surgery. You have found the very best place for oral cancer info and support. You will find tons of info on the main pages and here on the forum. Both the main pages and the forum also have a search function. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hi and welcome Karen, Hope all goes well with your checkup and glad to hear that you are doing OK. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Karen,
I'm very glad that you've found our little oasis on the net...sorry you had to but we're sure happy you're here! What you will find on these forums is support and advice from people who've been there and done it and are still in the fight no matter how far out of treatment/surgery they are.
Take solace in the fact that you now have people that will be able to relate to where you've been and what you are currently going through as well as the experience to help guide your way down this crazy road we call cancer.
Big hug my dear, welcome to the fold!
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Dec 2008 Posts: 1,004 | Hi Karenn,
Welcome to the group!! It's the best group of people...although most of us have not actually met in person I feel like I have.
Looking forward to hearing how your appointment went..keep us posted:)
Last edited by suzanne98; 01-19-2011 07:31 PM.
Suzanne *********** T1 SCC on right side of tongue Age 31...27 when diagnosed 4 partial glossectomies No chemo or radiation Biopsy on 2/2/10-Clear Surgery needed again...no later than April 2011 Loving life and just became a mother on 11/25/10 It's not what we CAN'T do..it's what we CAN do:)
| | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2010 Posts: 201 | Hi Karenn, Welcome to OCF! Hate that you had to look us up but glad that you did. This is the best group of friends around.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads 1/10/2011 Clear PET!!!
| | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2010 Posts: 224 | Hi there, i was glad when i found this forum, so I am glad you did too! I had almost same surgery, mine was on right, i had a "hemi" instead of partial, so they took half my tongue, and i had a neck dissection also. But same flap from wrist and thigh! I also had surgery last april, the 13th to be exact, Did you have radiation or chemo? What deb said about the signature is a good idea! It helps us to know where you are at in treatment and what you have gone through, which helps us answer any questions you may have, or relate better. Glad to hear you are doing good, and look forward to more posts from you,
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 | | | | Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2011 Posts: 168 | Hi Karen: I am new, too, new to this site, new to cancer. I have only been posting and reading posts for about a week now, and it has changed my life. I feel like it is here (and only here) that people get it. I am surrounded by amazing and loving support, but even my partner is on the outside. On this site, I find everyone's posts full of wisdom and insight. I don't have much wisdom to pass along, but I will try to help you any way I can even if just to say we are here for you. -Michelle
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
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