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Joined: Aug 2010
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Hello:

I'm 5 months out of treatment. There is one month I'm suffering muscular pain in the radiated areas in the neck (both sternocleido) and both trapecius.

I try to do exercise but I don't know if it is a good solution. The pain is stronger when I do some streching in these areas.

Is it there any kind of remedy? Exercises, streching, massage, electrostimulation, hot apply, cold apply, topical or oral NSAIDs ...?

Is the pain produced but a damaged muscular fibres or perhaps is it produced by vascular damage or both?

A lot of questions...

Hugs for everybody.

Last edited by Raymonet; 12-19-2010 08:09 AM.
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Hey Raymonet,
Just starting rads now so I cannot speak from my own personal experience. I work in the field of rehab though and recommend you see a physical therapist with experience with radiation effects. All of the above you mentioned will help - exercising, stretching, etc. you just have to do it the right way, in the right order, at the right time - a physical therapist can get you started on the right path to regain muscle use and decrease pain. When something hurts we do all kinds of things that are biomechanically wrong to compensate - in the end you're left dealing with the first problem and then the secondary issues that arise from improper compensation of movement.
Hope it's possible for you to see a physical therapist and get that shoulder/neck moving well again!
Jennifer


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
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I haven't had the neck pain but have read about it, and I think Jensip is right about seeing a PT for specific stretches.
More generally, I would recommend yoga, massage and easy walking. Those are all investments with a payoff that will be better than being inactive.
Best wishes.


Randy, Stage 3 tonsil SCC, node involvement, HPV-positive. 7 sessions of Taxol-Carboplatin, 35 rads finished 9/8/10. Post-TX PET and CT 12/1 showed "no metabolic evidence of residual or recurrent disease." Yay!
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Hi There,
I am 156 months post TX and still do get neck pain. I had 40 RADS and they beat the snot out on my neck,. I do strech it twice a day, some streaches a PT gave me. Once a week or so I will take Tylenol. I can PM you the strech if you like, they do work well.
Steve


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




Joined: Sep 2006
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Steve,

You must have flown through your recovery to be 156 months post Tx already!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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I'm 41 months out from the end of treatment, and know precisely what you are experiencing. You don't have a signature, so I can't tell if you had a neck dissection or, if so, what type.

The radiation fibrosis gives that "wooden neck" feeling, but the fibrotic tissue can also impinge on nerves that run through the side of the neck, and produce a variety of symptoms, ranging from stiffness, to muscle pain, to spasm, to symptoms mimicking carpal tunnel. Physical therapy and stretching has been helpful for some. There is also some literature indicating that botox injections can be helpful, but I don't know anybody personally who has had these.

If you had a neck dissection, the problem can be compounded, due to trauma to the nerves, particularly if the dissection extended into Level V, where the Spinal Accessory Nerve frequently becomes involved. That can result in a spectrum of symptoms all its own, including trapezius and shoulder issues.

You're not alone!


Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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[quote=davidcpa]Steve,

You must have flown through your recovery to be 156 months post Tx already! [/quote]


Ha ha, side effect...bad typing!!!
15 months!


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




Joined: Jun 2009
Posts: 138
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Posts: 138
Oh so glad to hear that my typing gone awry is a side effect of TX. I was afraid I was getting old or something.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13

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