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| Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2010 Posts: 142 | Another mucoepidermoid survior here. My detail info is in my signature. I agree with feeling very much alone even here since "we" are few and far between. I have to reschedule my test for my 1 year mark as I have a trip I am going to take. Last year I was having radiation instead of enjoying a free vacation in a 5 Star in Vegas. But I still have my daily PET scans from Largo and so far so good.
The one thing I learned was that THEY make statements that we take to heart like, I KNOW I was very lucky, I would never regain any feeling in the area of the surgery. I am just a year past the major surgery and at this moment the entire area feels normal. I do seem to have a progression on the dry mouth not sure why that would happen but small price.
One question of the group. I am using the gel but if I use it every night I have two molars one on the right and one on the left that get to hurting so that I can't eat soft bread. I have gone to limiting the time I use the tray and skipping a night about once a week. Otherwise I am in too much pain to eat. I had excellent teeth going into this and I tend to heal very fast and better than expected. I contacted the Dental Oncologist but she didn't have an answer. Any thoughts as to what might be happening?
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer 1/18/10 Clr PET 1/27/10 Surgery found Perineural invasion 3/22/10 Began Rad 05/05/10 34 rads 8/19/10 Clr Pet Scan 12/13/10 Clr Ultra sound/biopsy 5/4/11 MRI Clear 8/2/11 All Clear 5/25/12 All Clear 6/3/2016 All Clear
| | | | Joined: May 2010 Posts: 5 Member | Member Joined: May 2010 Posts: 5 | I'm in Ambler, so not too far. One of my closest friends is in Newtown. She's stage 4 Breast cancer (but that's a whole other story).
Diagnosed at age 41 Intermediate Grade Mucoepidermoid Carcinoma of Minor Salivary Gland Presented in Hard Palate Partial Maxilectomy 4/26/10 IMRT radiation completed 7/10 Obturator
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