| | Joined: Nov 2010 Posts: 19 Member |  Member
Joined: Nov 2010 Posts: 19 | I hope this message finds you doing better!!!
JAS
| | | | | Joined: Mar 2010 Posts: 20 Member | | OP Member
Joined: Mar 2010 Posts: 20 | I just had the third cancer tumor removed 12/26/13. After the second occurrence we determined it was HPV. This surgery seems to be so much more painful, waking me up in the middle of my sleep crying.
Squamous cell, tongue
First biopsy 2006, Stage 1 2008, 2010, 2012, 2013
To date: 13 surgeries & 3 nonsurgical biopsies
| | | | | Joined: Mar 2010 Posts: 20 Member | | OP Member
Joined: Mar 2010 Posts: 20 | Thank you, I am pretty much healed from it. Unfortunately I will be back in 2 months for the next one. Biopsy results suggest invasion.
Squamous cell, tongue
First biopsy 2006, Stage 1 2008, 2010, 2012, 2013
To date: 13 surgeries & 3 nonsurgical biopsies
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | This concerns me. If it is cancer simple excision is okay once or twice, but if it is still there, I wouldn't be waiting 2 months for anything. Even a small cancer can be aggressive, if it's invasive you've upped the risk. For every day a cancer exists there is the potential for it to spread to the lymphnodes (and at microscopic levels cancer cannot be detected on a scan. Once it reaches the nodes it becomes a higher stage and much more dangerous. I would seriously consider getting a second opinion.
best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | I 2nd what Cheyrl said. 12 surgeries, no chemo, radiation, PET/CT or other scans, pandendoscopy of the upper aerodigestive tract, biopsies of that area, and HPV positive? The primary could also be in the BOT, tonsil, which is the oropharynx, and metastised to the tongue. Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
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