I find aquaphor very soothing to my skin, too. However, check with your RO before you start using that. Mine likes aquaphor after you are totally done with radiation. He said he doesn't want it on my skin when I go in for my treatments-- I guess it somehow interferes with the radiation. We now have a compromise where I use it at night/shower in the morning before treatments and pretty much get it off!

Shelly, I will PM you!

That's how I used it, too, since they told me that I shouldn't use it right before my treatments. They also gave me a bunchof free samples of the aquaphor, and loaded me up with more every time I needed it.

Thank you bethers0808, I am just starting to get the redness under my neck. It's looking pretty angry right now. I will start doing what you say about the towel and aquaphor. I have been putting aquaphor on my neck but not the towel. I'm so sorry about your cancer, your too damn young!! You've been through so much and I love, love, love your positive attitude. Your an inspiration. I have consulted a lawyer. I am so pissed at those doctors for brushing me off. I have to give him some more info then we'll see if I have a case. Luckily even though I have a very aggressive cancer it stayed small and didn't spread. The question he wants answered is if they caught it in 07 can we definitively say it would be low grade. My pain is being managed so far with the morphine and magic mouthwash. I was also lucky in that my cancer was in the floor of my mouth, although my surgery was an extensive and complex surgery, yours sounds much more complex than mine. I wish you so much happiness in your life and Merry Christmas to you and your family. Shelly

Strange that different docs say different things. Mine never said anything about aquaphore while going through treatment. But I never had it on during my treatments. I would do the towels until i got to treatment. Take them off for treatment, and do towels on the way home from treatment, and then would apply aquaphore, just because I didnt want it getting everywhere. But never was told it could interfere with radiation! Strange strange.

Shelly~ I am glad your pain is being managed and maybe talk to your doctor about getting their professional opinion about what they think it would have been if they caught it in 07. If they put it in a letter that states in my professional opinion, if this was found in 07, it would have been low grade, and this this and this wouldn't have needed to be done. My doc was willing to put in a letter that in their professional opinion i wouldn't have needed radiation and would have only lost a small piece of my tongue instead of half of it. But I am not sure what I will do yet. My doctor wants me to follow through with the suit, but I am not sure if I will, cuz that could damage 2 docs jobs and what not. That's a tough decision.

Hope you treatments go well throughout and keep your chin up. Once you get through these treatments, usually a month or so after you feel so much better!

I was told no after shave or anything before treatments. It does interfere and could possibly cause problems. I used Aquaphor and pure aloe during treatments and came out mostly OK except for a few cracked skin areas and oozing of gunk . This cleared up a coupls of weeks later.

Shelly, silver sulfadiazine has been around for years. I found it extremely helpful during the last weeks of RT when Xclair and Miaderm didn't quite do the trick.

David 2

I used to wonder what a handful of clean good old muddy mother earth would do. One nevers knows.

There's a store I love called Lush, their products are pretty much all natural and I bet you could find something pretty close to real mud! They have some really soothing washes I've been using, very moisturizing. You could look them up online! Happy Holidays! Shelly

I had a similar experience. I am undergoing radiation right now and am in my second week. The sores in my mouth are terrible. I also want to stop treatment. Can you offer any relief for my sores. Thank you and I hope you feel better

Susan,

It's a tad unusual to have that reaction so early in the Tx. You definitely need to bring this to your RO's attention and get a prescript for what most call "magic mouthwash" and some effective pain meds. You need to get this pain under control as you MUST and I MUST emphasize MUST continue to get calories and water down your throat each and every day. You don't mention a PEG but even if you do have one you also must continue to use your swallowing muscles throughout your Tx or you could end up with post Tx swallowing problems.

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