| | Joined: Oct 2010 Posts: 47 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Oct 2010 Posts: 47 | Just to let all of great OCF members know:
My husband has completed all of his radiations and his chemo yesterday. Thank god.
Now the home care starts. Keeping fingers crossed for a faster recovery.
Have a question- Doctors have said the pain will shoot up for another 10-12 days before it starts to settle down. Has any one experienced something similar. Please advice. From today he is also experiencing throat pain which was never there before. Even the blood is coming out of his mouth when he spits. Pain has significantly increased.
Thanks.
Caregiver to husband 40 yrs. Was diagnosed SCC 09/2010. Soft palate, lft of tounge. Stage 4 HPV-
Radiation 70 gy & chemo start Nov 1 End Dec 17/2010.
1MRI-7 Mar 2011. Neck dissection-14 apr 2011. Lymph nodes removed 36 just 1 had cancer. F/U CT Scan-19 may 2011. "Cancer Free" as per doctors!
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Hi Roma,
I didn't have blood coming out but the pain was the worse the last two weeks of rads and the three weeks post treatment. Things should start to improve then. Tell your husband to be patient because the healing process is long and gradual. Wishing him a speedy recovery.
Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Sep 2009 Posts: 96 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 96 | Yes, the last two weeks of treatment and the the few weeks following treatment. Try to relax about things as much as possible right now while you are healing.
31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Yes most of us experience our worse time during the 2 to 3 weeks POST Tx. Let's hope he's one of the lucky ones!
Once he walks "out of that tunnel" and begins his recovery don't be surprised if it takes all of 2 years with the first year being the most challenging. His taste and saliva issues will take many many months to reach their new normal. It was 15 months post Tx for me before I was satisfied with my new normal. Point is don't let others discourage him if his recovery is slow like the rest of us.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Everyone recovers at their own pace. Ive been told it takes one month of recovery for every week in radiation. My docs also told me just cuz I wasnt going to radiation doesnt mean it stopped. The radiation continues working after he has finished treatments. This isnt something that is cut and dried. Most people begin to feel a little better after 2 to 3 weeks post treatment. Most important is nutrition, hydration and rest right now. Best of luck to your husband with his speedy recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | My Oncologist told me mine is from radiation burns and chemo. I hate to say this but I was also told it would only get worse. "BINGO" He sure is right but it's just a part of our life as no 2 of us are the same. Your dad needs to force the nourishement. Give him our best .
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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