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| | Joined: Dec 2010 Posts: 6 Member | OP  Member
Joined: Dec 2010 Posts: 6 | Brief history: Observed white thingy under my tongue approx end of april. Sched dental visit early may and referred to oral surgeon end of may. Examined and re=referred because of location on/near saliva gland. Examined and sched. biop surgery in June which had two lesions removed with both being cancerous. July 2 had surgery 1) under tongue 2) on jaw bone which involved a bit of grinding along the jaw.
Many bad teeth delayed radiation treatment until resolved with 12 extractions 1 restore and cleaning
Mid sept started 6 weeks of m-f treatments. Not aware of levels.
Feel great, enjoyed a full meal again on Thankgiving after weeks of soft foods.
FEEL GREAT and very Thankful. I realize recovery not immediate and only jelly bean size lump near where bone grind was.
Review appointment for Dec. 22nd. | | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Qtip: welcome and glad to hear you came through all that with obvious vigor and a positive attitude. It's especially amazing to me that you were able to do the Thanksgiving thing so quickly after treatment ended. Bravo!
We'll look forward to further reports.
David 2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Welcome to our family and the best to what seems like a fighter that has won a war.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2010 Posts: 6 Member | | OP Member
Joined: Dec 2010 Posts: 6 | I have a younger cousin fighting a serious form of pancreatic cancer. I would feel like I let her down not to clear this lower hurdle. That's not to say I don't take it serious but I respect the more severe battles I have seen and heard of. Consider myself a rookie. Appreciate the fellow guidance and understanding of this community. | | | | | Joined: Dec 2010 Posts: 6 Member | | OP Member
Joined: Dec 2010 Posts: 6 | Consider myself a rookie and after reading your history I consider myself even more blessed and admiration and respect to you. | | | | | Joined: Jun 2009 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 71 | Right on Qtip. Well done with Thanksgiving. I am smiling for you. I'm a fan of Tribe did you leave your wallet in El Segundo? Peace.
11/1999 SCC tongue - surgery
1/2000 Met(s) in lymph nodes - modRND
2/2000-4/2000 RT ~6 weeks
end of 2006 SCC tongue - surgery
1/2008 SCC BOT - surgery / PEG installed
2/2008 chemo & RT
4/2008 last time I consumed solid food by mouth
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Wow Qtip! Eating on Thanksgiving - thats fab!! I'm three months out and only started eating solids now. I'm with you on feeling fortunate and blessed. There are many more who have a much harder road to travel than us. I do thank the god every day.
Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Dec 2010 Posts: 6 Member | | OP Member
Joined: Dec 2010 Posts: 6 | I was also blessed to have the opportunity to travel to Australia some 20 yrs ago. Landing in Sydney on New Years day. Resting from the flight and touring for several days, then off to Cains for more relaxation. Boarded the narrow gauge train stopping often to experience local flavor. On to Brisbane which became my favorite city in Australia. Unfortunately did not get west and to Perth. Family members have told me that Perth was their fav. city. Hope I am not too forward with this "Right on ya mate". | | | | | Joined: Sep 2009 Posts: 96 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 96 | Welcome Qtip. WOW on eating at thanksgiving. That is awesome. I haven't eaten hardly anything in almost two years. Way to give it the best fight you got!
31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
| | | | | Joined: Sep 2009 Posts: 96 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 96 | I will add you and your family to my prayers with your cousin going through one heck of a battle I am sure.
31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
| | | | | Joined: Dec 2010 Posts: 6 Member | | OP Member
Joined: Dec 2010 Posts: 6 | I am seeing a large number of re-occurances posted here. Any statistics on percentage of stage 1 patients getting same ? | | |
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