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#125808 12-07-2010 11:30 AM
Joined: Jun 2009
Posts: 440
ESikon Offline OP
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I have about a months worth of gravity bags and bolus 60ml syringes for anyone who wants them. I also have several cases of Fibersource cans as well. Let me know if anyone is interested in any of these items, I want to get rid of them ASAP.



Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
ESikon #125817 12-07-2010 05:50 PM
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Posts: 939
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Posts: 939
Elizabeth,

If no one takes you up on this, try calling your RO's office. Bill's RO's office was very happy to get our stuff..almost as happy as we were to get it out of the house. They were able to give it to patients that could not afford the supplements and supplies.

Just a thought,

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #125819 12-07-2010 06:08 PM
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Administrator, Director of Patient Support Services
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If you had a nutritionist at the hospital where you were treated they may take them. My old nutritionist was thrilled whenever I was able to give her my leftovers.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #125850 12-08-2010 06:32 AM
Joined: Jan 2009
Posts: 476
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We donated John's supplies to the Cancer Center he was treated at. The nurse said they have a lot of patients who can't afford the supplies. So HAPPY you don't need them anymore.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
slim #125864 12-08-2010 08:34 AM
Joined: Jun 2009
Posts: 440
ESikon Offline OP
Platinum Member (300+ posts)
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I asked MD Anderson but they won't take them back, said something about if for some reason the cans needed to be recalled them they would have to have documentation on who they gave the free stuff to in order to notify them and that it was more work for them, blah, blah, blah.

I also called the supplier but they said nope too. I will call one of the local hospitals or something.

Thanks for the advice! I just want to bless someone else with it.


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
ESikon #125887 12-08-2010 03:10 PM
Joined: Feb 2009
Posts: 88
Supporting Member (50+ posts)
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Posts: 88
Hi Elizabeth,

I sent you a PM about the supplies in that I was interested in some of your items if they work with our pump. You can get back to me.

Thanks,
Bonniey


CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years

2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09

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