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#124205 11-05-2010 10:36 AM
Joined: Nov 2010
Posts: 2
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Joined: Nov 2010
Posts: 2
I'm having trouble figuring out how to use this site,not to puter savy.Would like to ask questions & recieve input from other users.Please help.Can PM me. Thanks alot

Joined: Sep 2006
Posts: 8,311
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Joined: Sep 2006
Posts: 8,311
Lisa,

I removed your e mail address as scammers can get it easily. I changed it to Private Message me which they can do within this site and you will know when you log on that you have a PM. This site is very user friendly. Just give it time.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jun 2007
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Joined: Jun 2007
Posts: 10,507
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Hi Lisa
Welcome to OCF. Please do exactly what you did to write this post. Click on the topic heading and then click on NEW TOPIC by the top left. Most new members write a short intro about themselves and what they are going thru. Ex..just diagnosed with Stage II SCC, beginning radiation next week, or something like that. I have added a few links that will help you along. One is the abbreviations which can take a while to pick up and also a link about the OCF website.

Im going to send you a PM (private message) too. That is kinda like an email but it is just on here in your own little mailbox that only you and the other person can read it. To do a PM you click on the person's name that you want to message and a drop down window will open click on SEND PM. It will open into a box to type what you want then click SUBMIT on the bottom.

about the OCF website... http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=65994#Post65994

abbreviations... http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=38706#Post38706


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Here is a PM I received today from Lisa. Its encouraging to others who are new here and scared. Congrats Lisa!!!!!


Great news!It's not cancer!I am so happy & so relieved!It's a polyp.The biop in his office wasn't that bad either.Thanks to everyone here,especially Christine B.God Bless you all & best of luck to you all.You are in my prayers.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

Moderated by  Brian Hill 

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