Previous Thread
Next Thread
Print Thread
#1250 05-24-2003 01:57 AM
Joined: Nov 2002
Posts: 541
karenng Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2002
Posts: 541
I wonder if Brian or anyone here can give me some input on having a test by PET/CT scanner. I attended a talk today by a private hospital on cancer diagnosis and treatment. The speaker highly recommended using this for cancer detection and claimed that this is the most advanced and accurate equipment so far available. This scanner is a combination of PET and CT. The private hospital is making some sort of promotion and with a referral from a public hospital, the test costs about USD$1200. Since I was treated in a public hospital here, I never had a PET scan and my oncologist said that it always shows false alarm. My question is whether it is worth taking this scan as a follow up test on top of those I have on routine checkup like ultra sound, MRI to detect possible met.?

Karen stage 4 tonsil cancer diagnosed in 9/01


Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
#1251 05-24-2003 07:20 AM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Karen,
go here to see an article from Sloan Kettering about PET/CT http://www.mskcc.org/mskcc/html/6371.cfm


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#1252 05-24-2003 01:22 PM
Joined: Apr 2003
Posts: 41
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Apr 2003
Posts: 41
Gary-
That was a great link that many of us, including Karen, benefited from. Thank you for that post!
Desiree'

#1253 05-24-2003 03:21 PM
Joined: Nov 2002
Posts: 458
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Nov 2002
Posts: 458
To add a little personal experience, I've had 3 PET/CT scans done at Adventist in Hong Kong, they're affiliated with Soan-Kettering some way. The worry about the false-positive comes from the way the PET part works. The PET as I understand it shows cellular activity, actually I think an uptake in glucose levels. Cancer cells are more active, so they would show increased cellular activity.

Problem is, infected lymph nodes, and damaged muscles in the healing process sometimes also show increased uptake.

My doc seems to be of the opinion that the tests might be as high as 20% false positive, but that MRI isn't any more accurate actually.

This last go around, the tests showed 3 suspicious nodes, with one being real suspicious. Needle biopsy confirmed the cancer so during the neck dissection they removed amoung others, all three nodes. 2 were cancerous, the third and some others were infected.

In a nutshell, I'd still reccomend the PET/CT based on my experience. The other good part of it is that the PET/CT computer data can be used to program the IMRT equipment for a higher degree of accuracy.

Hope this helps, I'd have to check my insurance billing, but the price seems a little steep for the test though.
Bob


SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
#1254 05-24-2003 05:08 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
That answer could be found using the web sites search feature, and it would have found this news article http://www.oralcancerfoundation.org/news/story.asp?newsId=32 The MSK link is a good one also.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#1255 05-24-2003 10:05 PM
Joined: Nov 2002
Posts: 541
karenng Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2002
Posts: 541
Thank you all for your input. Based on the information I have read,I am actively thinking of having one and will discuss it with my oncologist this coming Tuesday.

Karen stage 4 tonsil cancer diagnosed in 9/01.


Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5