| | Joined: Sep 2010 Posts: 2 Member | OP  Member
Joined: Sep 2010 Posts: 2 | Hi
I have joined some time ago hoping that I would have nice and positive stories to tell. My treatment for tonsil cancer which was made up of chemo & radio theraphy finished in March. I lost 30 kg and had additional problems with anemia. I just managed to eat semi normally a couple of months ago and put 4 kg back !! & I was over the moon. A routine CT Chest Scan for something completely different revealed 2 nodules in my lung & was diagnosed as secondary Lung Tumour which I have been told is terminal. I received the news a couple of days ago and I don't think I will ever come to terms with this. Everytime I look at my my beautiful 9 year old girls I burst into tears ! They are doing a full scan next Tuesday and I assume they will be giving me an estimated departure time! I intend to get few second opininions when the report is ready.ANY ADVICE, HELP WILL BE ENORMOUSLY APPRECIATED. LONI | | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Loni,
I'm very sorry to hear this news. I don't know anything about lung tumors, but I do know about Cancer Centers are you going to one if not I'd get another opinion from one ASAP. They are up on the latest in technology.
My prayers and thoughts are with you and your family.
Take care,
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Loni:
I totally agree with Connie. GET A SECOND OPINION, OR A THIRD. Most cancer centers have trial and experimental treatments that end up being successful - do whatever and everything possible before you accept "nothing." I will pray for you, so keep in touch.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | I don't know how they can tell you it's terminal cancer without a biopsy. I had a suspicious looking spot in my lung which I was told could be either a new cancer or mets from my head and neck. A needle biopsy was done and it turned out to be benign. Not to give you false hope or anything but don't write yourself off until a biopsy says what it is for sure.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Loni, welcome to OCF. I hope you will go to a cancer center for another opinion. I dont know what facilities are available in other countries. Do not wait to make the appointment, call right away. As a mother this is a very difficult thing to go thru. Best wishes and please keep posting. We are a great source for moral support.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2010 Posts: 2 Member | | OP Member
Joined: Sep 2010 Posts: 2 | Thank you SO MUCH for your supportive words. I WILL BE STRONG for my Daughter's sake who is 8 & everytime I look at her I burst into tears! xx | | |
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