| Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jan 2010 Posts: 142 | I have a strange spot that came up on my inside lower lip about 72 hours ago. I thought I should wait maybe a week to 10 days to see if it heals. But an RN friend of mine told me to check in with the doctor and of course they just need to take a look. This seems a bit of over reaction or do I really need to be this careful? If there is a recurrence does it usually look like the first one?
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer 1/18/10 Clr PET 1/27/10 Surgery found Perineural invasion 3/22/10 Began Rad 05/05/10 34 rads 8/19/10 Clr Pet Scan 12/13/10 Clr Ultra sound/biopsy 5/4/11 MRI Clear 8/2/11 All Clear 5/25/12 All Clear 6/3/2016 All Clear
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Hi Seda Bug:
What does it look like? I had a strange reddish pimple-looking thing that came up on the inside of my cheek several weeks ago, and like you, I wondered. I couldn't get in to see a doctor for about 3 days, and finally one of the ENT doctors I have looked at it and said "You have a stone from a stopped-up saliva gland." He proceeded to squeeze it like you would a pimple (eeeeeeeek), and finally used something like a blackhead remover thingy to get a white hard thing out of it. It stayed red and was sore for several days. Anyway, I guess anything strange we do need to have checked. I had another spot on the top of my tongue that looked reddish come up a few days ago. I was scheduled for a dental appointment anyway, so I showed it to the dentist. He didn't know what it was but said it didn't look like anything to worry about - said most tongue cancers usually come up on the sides or under the tongue. I went to an ENT doctor and he looked at it and felt around saying it wasn't hard or anything and to just watch it. He prescribed nystatin to rinse in my mouth. That was about 4 days ago, and I think it's better, or at least not so red. I may go to the other ENT doctor next week if it's still there. Anyway, if yours doesn't go away, like you said, in 72 hours, go have it checked. It could be a mouth ulcer - I've had them before on the inside of my lips. julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Seda,
Do what you need to do to ease your mind. We are all a little paranoid about any thing out of the norm in our mouth...I think it's natural considering what we've been through.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Hey Seda,
I say give it a few days to see what it does or doesn't do then if necessary get it checked out.
Hope it's nothing and disappears!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jan 2010 Posts: 142 | I am happy to report that it is completely gone. It is amazing how crazy this makes you.
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer 1/18/10 Clr PET 1/27/10 Surgery found Perineural invasion 3/22/10 Began Rad 05/05/10 34 rads 8/19/10 Clr Pet Scan 12/13/10 Clr Ultra sound/biopsy 5/4/11 MRI Clear 8/2/11 All Clear 5/25/12 All Clear 6/3/2016 All Clear
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | That is WONDERFUL. I know how you feel - every time I find something new appearing in my mouth, I freak. So happy for you! julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2010 Posts: 201 | yAY!!! So glad it's gone. Even as a caregiver I now freak out when I get a sore or pimple in my mouth. It always seems to go away but needless to say I'm always at my dentist for them to check. Thank goodness she is very patient.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads 1/10/2011 Clear PET!!!
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Ever since radiation treatment I have had several sore spots show up in my mouth that send me to the Drs. They are all understanding about it. Most of the time the spots go away in a few days and I worried for nothing. By ENT is always telling me to come in when there is concern because I am not normal. Ha! Ha! My RO said I was at least normal on the worry front. He said he would concerned as well, if he were in my shoes. Right now I have a sore spot on the tip of my tongue and know I have a dentist appt tomorrow so I will have him look at it. Anyway jsut wanted you to know that having those feelings and concerns is completely normal, and I am so glad I am not the only one who gets concerned every time a sore spot shows up.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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