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| | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) |  "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | It's early days yet. I had something similar and it was about three weeks before I was allowed home from hospital. Improvement was rapid after that. It takes quite a long time for the swelling to go down - months probably. But it does get better!!! When your tongue goes down, speech and swallowing will be a different story altogether:)
I had lichen planus too. Went to many doctors and specialists over about 6 years before someone decided to biopsy it. I also have the dysplasia but my surgeon is not too worried about it.
I know what you are going through and wish you all the very best. Let us know how you progress.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Nov 2010 Posts: 36 "OCF Canuck" Contributing Member (25+ posts) | | "OCF Canuck" Contributing Member (25+ posts)
Joined: Nov 2010 Posts: 36 | Hi Laureanne, I am hoping you are feeling a bit better now that it is nearing the end of the first week of November. I have not had what you had so I can't offer answers for your situation exactly but there are people here who probably can. I was reading your posts tonight and just wanted to come in and be a bit of a cheerleader for you! This is a tough time for you I know and everything is so very new. If I were you I would be asking all the same questions. How are you sleeping? I found sleeping after my surgery awkward and it took time to actually feel rested. I hope you are having some luck with rest.
Laureanne I hope you are doing better and I look forward to seeing you post again!
Meggie
55 yrs, Female, smoked for 4 yrs 35 yrs. ago, SCC right underside tongue and floor of mouth, laser surgery took 1/3 tongue Aug 2010, 3 weeks later in Sept right neck dissection 40 nodes removed with 1microscopic spot in one node. No chemo or radiation.
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