| | Joined: Sep 2010 Posts: 71 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Sep 2010 Posts: 71 | 1st treatment was very uneventful...no running out in fear. LOL I swear that mask shrinks every day tho!
Michele in IL
Female - 53 no smoke/drink
tongue Biopsy 8/2010
Surgery 9/21 for SCC left side tongue stage II. Prtl removal tongue/left side lymph nodes. All Clear
Radiation started 11/2, ended 12/17
Lymph node involved left side along with gum involvement 2/9 Fibular flap failed 2/22.
passed away 1/12/12
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | So glad your first treatment went so well, Michele! Hope they are all as uneventful! (It could happen!)
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Aug 2010 Posts: 157 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Aug 2010 Posts: 157 | Mine was very eventful! Did not start rads today...instead got some teeth grinded down,a thorough denistry cleaning, blood work, and more wait times. But chemotherapy is a for sure go! tomorrow morning. Hoping the radioligists get their you know what together and start this week. I swear both teams need to stop fighting and start treating, not tricking. Anyway, CISPLATIN Round 1 tomorrow, wipe my forehead, poor some water on my back and slide my mouth piece in, DING DING DING!!!
Nathan
SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
| | | | | Joined: Sep 2010 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2010 Posts: 71 | Sorry you are still in a hold and work pattern but glad you got the dental stuff done, etc.
Glad you have a go for tomorrow...don't go crazy and walk a marathon or anything...:o)
Michele in IL
Female - 53 no smoke/drink
tongue Biopsy 8/2010
Surgery 9/21 for SCC left side tongue stage II. Prtl removal tongue/left side lymph nodes. All Clear
Radiation started 11/2, ended 12/17
Lymph node involved left side along with gum involvement 2/9 Fibular flap failed 2/22.
passed away 1/12/12
| | | | | Joined: Aug 2010 Posts: 157 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Aug 2010 Posts: 157 | HAHAHA! Actually I want to really really bad! I swear if I dont get to sea sick I may ride my long board around the block at least once : )
Nathan
SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
| | | | | Joined: Aug 2010 Posts: 157 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Aug 2010 Posts: 157 | Anyone familiar with Cisplatin? I am having 3 rounds, should I take one of the zofran or premethazine pills tonight before I go to bed to have it in my system? Or just wait and see what happens? I will be gone bright and early in the morning, I am as prepared as ever. Hopefully I will be able to do my video post after that, I can deal with the nausea, it is the fever thing they keep scaring me about...any ideas?
Nathan
SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
| | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi Nate. This post is probably to late to help you today. My husband had weekly Cisplatin in conjunction with the radiation. He had radiation Monday through Friday and then every Friday after radiation he had the Cisplatin. This was for 7 weeks. They coordinated it so he had the radiation and Cisplatin together. The way they explained it to us was that the Cisplatin enhances the radiation since chemo alone doesn't do anything for this type of cancer. When John would have the Cisplatin they would first give him anti-nausea meds through his IV. John took both Zofran and Compazine all through treatments and afterwards. Midway through treatments when the mucus got so bad he was constantly nauseas. Good luck and just take each treatment as it comes. We had a calendar on the refrigerator that we would cross each day off.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Nate, I answered your question and now I dont see it.
Its not necessary to take zofran right away. In my experience, it takes about 5 - 7 days before the nasuea will hit you. Zofran works great when taken on a regular basis. Ususally the first round of chemo is easier to tolerate than any subsequent doses. Ask your doc for the small zofran that is dissolvable or better yet, it also comes in liquid form.
One thing I learned about anti-nasuea meds is to take them a little bit before its time. If the label is take every 6 hours then at 5 hours its time to get another dose in. This way you will not let the nasuea kick in. This is how you can stay on top of the nasuea before it becomes impossible to keep the medicine down. If it were me, I would start taking the zofran at day 5 after the chemo. Of course, Im not a doctor just a patient who went thru this so please check this out with your doctor.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Nate (And Michele):
Thinking about the two of you. Hope all went well for the both of you today!
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Ya haven't heard from Nate for 2 days unless I missed something yesterday. Sure hope you both are feeling OK.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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