| | Joined: Aug 2010 Posts: 157 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Aug 2010 Posts: 157 | Whats up Terri!! Survivor stories are always awesome, I try and pay more attention to those stories rather than the opposite.
Your Friend,
Nathan
SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | I was building up to a "what if it comes back" moment today, and then I read your post. 17 years! I'll keep that thought.
Welcome!
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Hey Teri,
I found this site shortly after my diagnosis. I had already found all the sites that had the ugly info on them; I was looking for survivors and their stories. I wanted to know I at least had a future to look forward to.
I've been coming here ever since.
My ONE YEAR ANIVERSARY FOR COMPLETION OF TREATMENT WAS YESTERDAY!
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Jun 2010 Posts: 2 Member | | Member
Joined: Jun 2010 Posts: 2 | My mom is a 5 year survivor but lives a much different life. Once a non stop powerhouse now she rarely leaves her home. She is addicted to oxycotin and refuses to see this as an issue . She refuses to eat and uses only a feeding tube. Had radiation and chemo. Her family loves her but she will not live near us. It breaks my heart that surviving for her is just that not enjoying life. I know that she has been to hell and many times is still there. Is there any way to reach her and improve quality of life.
Grieving Daughter | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Sometimes making a change from something familiar where you have gotten used to knowing what to expect can be very difficult even if the change would be a better one and would improve well being. Have you talked to her doctor re the oxycotin? Maybe he would have an idea or could talk to her about getting off the oxycotin. My son always reacted better to suggestions when they came from someone other than me. Printing out and showing your Mom what others have said about the benefits of exercising the mouth with "real" food and not only relying on the feeding tube might help. I sure hope that things improve with your Mom so that you can feel better too!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Oct 2010 Posts: 5 Member | | OP Member
Joined: Oct 2010 Posts: 5 | Congratulations Kelly! That is fantastic--I hope you are having a grand celebration!
Terri | | | | | Joined: Oct 2010 Posts: 5 Member | | OP Member
Joined: Oct 2010 Posts: 5 | Dear Daughter,
I am really sorry to hear about your mom. Will she listen to your concerns? Hard to know the impact of the addiction. You might get help from people or groups that deal with addiction--just a thought.
There is a way for us to communicate privately by email and I'd be willing to do that is you want to.
Be well,
terri | | | | | Joined: Oct 2010 Posts: 5 Member | | OP Member
Joined: Oct 2010 Posts: 5 | Thanks Marlene. Believe me, I had plenty 'what is it comes back' moments and I'm here. Glad that helped!
take care, Terri
| | | | | Joined: Oct 2010 Posts: 5 Member | | OP Member
Joined: Oct 2010 Posts: 5 | I agree about survivor stories. My saga is pretty dramatic and I'm here to tell it, so super grateful.
take care,
Terri | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Terri,
I think we are all interested to learn a little about the details of your experience with OC.
Things like type of OC, treatment and any issues etc.
also if you could add a signature that would be great (see my previous post).
Cheers
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
