| | Joined: Aug 2010 Posts: 157 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Aug 2010 Posts: 157 | Hi all,
I just wanted to say as most of you know how hard emotionally it has been on me the last few days but you always seem to pick me back up. Look, for anyone interested in really knowing me as a person and just putting a face and voice to my posts I have decided to do a daily video blog each and every day. Well, at least until I just cannot anymore but I have found a sense of determenation there feeling I may be able to help the younger group of OC patients, but any way just look up " Cancer Fight Log " and I should pop up every day : ). Just letting my bestest buds in the world know!
EVERY LASTING SCAR-Hard rain pours down on the concrete, Seeps in deep below. Cold screams of the city are heard through the walls Of every home. Most seek for a deeper meaning,Beyond their daily woes most see nothing more than black clouds, its all they know. We become our scars if we let them, But all that we truly need is out there for the taking. We scream every word, its brought us all together. Every lasting scar reminds us how we got here, we scream every word but its brought us together. Every lasting scar shows what its taken to be who we are.
Some dwell into emptiness, the hurt they claim is real,been let down now its meaningless,they find ways to conceal. Never to be seen again until its all too late and if we do not learn from it all well repeat the same mistakes. We scream every word, and its brought us all together. Every lasting scar shows us what its taken to be who we are.- Jamey Jasta
Your Friend,
Nathan
Last edited by Nate82; 10-19-2010 06:34 PM.
SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
| | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Holy cow Nathan!! You look amazing for surgery such a short time ago and your speech is
So good!! I am amazed at your progress and find it hard to believe that you wont pull through rads fairly well. Thanks for the post and video.
Last edited by Susan3175; 10-19-2010 07:01 PM.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Hi, Nathan -
The Jamey Jasta quote is great, and you will learn that you *are* more than the scar.
Good Luck with your video log and your journey. We're all pulling for you.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Your look and sound good. Your a fighter, you will get through this!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | What a wonderful idea! I have to agree that you look and sound amazing after the recent trip through hell with the surgery. I think about you so often and delighted to see the progress you've made.
Your friend in NC
Dodie
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | | Joined: Oct 2010 Posts: 4 Member | | Member
Joined: Oct 2010 Posts: 4 | I think it is great that you are doing this blog. It is a way to cope and express yourself, as well as practicing your muscles and speech for a full recovery. I wish you the best. Keep your head up and know that you have a great support system! | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Nathan - You are amazing! The video is great and I love the Jamey Jasta quote. What a great way to express what is really happening, to help others, spread the word about OCF and to help yourself as well. You remind me so much of my son and the fight that he had to get through that dark tunnel to where he is today! We are with you, Nathan - keep up the good fight! You can do it!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Nate I'm not in the young crowd demographic you mentioned you are trying to help. I'm certainly to old to wear a baseball cap backwards (Actually I don't even wear baseball hats anymore, but Australian Outback type hats). What type of surgery did you have, since you look really unscathed in the video? although I started off clean shaven, I did end up with a beard like yours since I couldn't shave during the radiation. The month after TX, all the skin on my face gradually fell or peeled off removing the beard but I'm pretty sure that was a result of the Erbitux chemo. Just a heads up that depending on the field of your radiation, future beards may be at risk. I sport a nice handlebar mustache now, but the lower half of my jaw & chin is perfectly smooth and hairless forever. Just another joy of radiation, the gift that keeps on giving. Sorry to hear that most of your friends "bailed out on you", but that's pretty common. You have the right attitude to win this. Keep the Faith Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 177 | Nathon, You are amazing! thanks for sharing that with us!! You look great and sound great! I am sorry if you feel like your friends have bailed. I know that I shut my friends out when I was at my worst. I had a few people that intercepted and I just basically hid out. I guess we just get through it the best we can, wether we are the patient or the friend. I know when I was younger I had such a hard time with hospitals and stuff. I just didn't know how to respond. It wasn't that I didn't care. I am getting better as I get older. I will be on the look out for your utube updates. Try to let us know when you update it.
Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Nate,
Great video you look good and your speech is wonderful it's much better than mine. I was told it's because I talk too fast:)
Everything will work out in the long run right now your down and out. We've all been there, hang in there before you know it this will be all behind you.
You remind me of my son when he was in his twenties in fact you kinda look like him, took me back for a second.
Take care and keep us posted.
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
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