| | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2010 Posts: 49 | Hi Everyone,
I hope everyone is well. Just wanted to say hello and give you an update on my dad's case... My dad is back home, feeling much less depressed and I see him better everyday, he actualy is happier than before. We had the post-op meeting last friday and the pathology results from the operation say my dad's cancer did not spread to the lymph nodes, the doctor said clear margins, all clear. I still feel some chest pressure as I type this message, I am feeling relieved from some heavy load. I feel so happy. We don't know if he will have radiation yet but that is okay. Step by step. I have been reading many of your stories and posts but feel shy to comment because I'm just new and have no idea of what to say, sometimes I laugh with some posts and cry with others. I wish you all the best <3 xoxo
My Dad:
Squamous Cell Carcinoma,Stage 2, Right side of Tongue
Dx 7/19/10
Partial glossectomy and neck dissection 8/18/10
Reocurrence: 04/2011 Base/back of Tongue right side
Surgery: Partial glossectomy, flap 06/15/2011
Rad and Chemo finished on Sept/ Oct 2011
Recovery and assimilation. Enjoying life
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Thats excellent news!!!! So happy that you posted an update  You must be so releived that your father is doing so much better. As far as being shy....DONT!!! You are not new anymore, you have been around since July and have at this current count made 13 posts already. We are all one big family here and would welcome your comments. Ive made many friends here and have met several in person. Being in Jersey, you may even want to join in on Susan Lauria's oral cancer walk coming up on Sept 25th in Andover. Its in honor of her brother David who was lost to this awful disease. I will be there, so will several other OCF members. If you can go, please send Susan Lauria or me a PM so we can be sure to meet http://www.oralcancer-screening.org/events/index.php?com=detail&eID=10
Last edited by ChristineB; 09-08-2010 05:31 PM. Reason: add link
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Great NEWS!!!!! I love reading post like this...glad is healing so well..
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Benfry - that is GREAT news about your Dad! The relief one feels at good news is almost indescribable. It's like walking on air! Please stay in touch and post your comments any time. Just say what you feel. I'm so glad things are going better and hope they continue to get better all the time.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | Benfry, thanks for sharing that WONDERFUL news. I know you are totally relieved. Will your Dad be receiving any other treatments such as radiation?
BIG HUG
Dodie
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | That's wonderful news! I know that you all must feel a good amount of relief!
I ended up just having the surgery also.
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2010 Posts: 49 | Thank you my friends,
I'm excited to see my dad doing so well,
I delayed posting because tomorrow we will finally know if he needs radiation. Whatever it is he won't be alone. I've been talking to him about it, he really didn't want to have it at first because he is scared but he always says he will do anything he has to =). He knows a little about it because my older sister had this rare tumor retinoblastoma when she was three and she needed radiation so we put her as an example that we are lucky this treatment exists. His doctor didn't even want to touch the subject then because he sees that everything is going well so I'm crossing my fingers for tomorrow and forever
Benfry
My Dad:
Squamous Cell Carcinoma,Stage 2, Right side of Tongue
Dx 7/19/10
Partial glossectomy and neck dissection 8/18/10
Reocurrence: 04/2011 Base/back of Tongue right side
Surgery: Partial glossectomy, flap 06/15/2011
Rad and Chemo finished on Sept/ Oct 2011
Recovery and assimilation. Enjoying life
| | | | | Joined: Nov 2008 Posts: 17 Member | | Member
Joined: Nov 2008 Posts: 17 | Hi Benfry, i can understand your concerns with radiation. when i was daignosed in 5/2008, i was told if you have radiation, you can never have it again should you have a re-occurance. i was diangosed with Squamous Cell, soft pallet in May 2008 - T1. i had surgery and for 15 months had nothing else. in 11/2009, i was diagnosed with Squamous under the tonge (not related to the soft pallet) again surgery as it was still just a T1. May 2010, i had one node show up with cancer. i had 1/2 neck disection. again, no radiation or chemo. August 2010, i had a spot on my epiglottis. i'm now on a trial drug with surgery in 3 weeks.
i hope you consider other optiosn before radiation. i'm still holding out for a last chance.
if you are able to get into trial drugs, you might ask about Tarceva.
God bless your family and father in these hard times.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Benfry
It's no longer true that you cannot have radiation a second time if there is a recurrence. I'm living proof of that. Plus I had the so called "maximum" the first time around of 72 GY.
The difference is now they have CyberKnife as a tool to use after standard IMRT.
If you're nervous, it's helpful to get an opinion from a CCC that is familar with the new developments in radiation. Unlike your father, I did not get clear margins with my surgery nor was my pathology report very good (perineural involvement)so the consensus was that if I did not get a second dose of radiation, the odds were that the tumor would come back a third time
Radiation is not easy but it's much better than a recurrence.
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | Benfry, hope you got a good report from your Dad's MD. So glad he is doing well.
HUGS
Dodie
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
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