| | Joined: May 2007 Posts: 11 Member | OP  Member
Joined: May 2007 Posts: 11 | Hi all.
I'm sorry if this post seems very unprepared, but this new diagnosis has taken us by surprise, and the cancer seems to be very aggressive. I was wondering if anyone else out there has had non-Hodgkin's lymphoma? This was caught with a very small PET hot spot on the iliac bone (back) and back pain. His white blood count and platelets are low. See below for more details. Tomorrow he gets a bone marrow sample and lots of bloodwork. Monday a CT scan, and then some time next week we'll have his staging, prognosis and treatment plan.
This board was an amazing source of information when DH was in treatment 3 years ago - I'm still so grateful to all of you who post and reply here.
Thanks for letting me share.
Shelly
CG to husband, age 58 (nonsmoker/seldom drinker), Dx SCC right tonsil and one node - tonsilectomy 5/15/07, Rx Cisplatin x 3 with IMRT x 35, Peg 7/6/07, last chemo 7/20/07 and last rad 7/25/07; PET scans clear until 4/10, 9/13/10 diagnosis of "ALL" leukemia, in hospital for 2-4 weeks treatment
| | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Hi Shelly,
So sorry to hear about your husband new Dx! I had Non-Hodgkins lymphoma in 1991 when I was 28. *VERY* aggressive which, apparently, made it more treatable. I went into a research trial of "high dose CHOP" with neupogen, which was brand-spanking new back then, went through 12-weeks of hell, mostly in the hospital, but made it through. I was declared cured in 1995 and its never come back. I have, however, had other health issues (clearly!) but no one has ever been willing to tie that illness or treatment to any of the health issues I've had since.
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: May 2007 Posts: 11 Member | | OP Member
Joined: May 2007 Posts: 11 | Hi Margaret.
Thanks for your reply. It's good to hear that things went well for you. It looks like he'll be starting chemo within 7-10 days.
Shelly
CG to husband, age 58 (nonsmoker/seldom drinker), Dx SCC right tonsil and one node - tonsilectomy 5/15/07, Rx Cisplatin x 3 with IMRT x 35, Peg 7/6/07, last chemo 7/20/07 and last rad 7/25/07; PET scans clear until 4/10, 9/13/10 diagnosis of "ALL" leukemia, in hospital for 2-4 weeks treatment
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Shelly- Sorry to hear of this news! Will keep your husband in my thoughts and prayers. So sorry you both have to go through this again. Will be praying for a speedy and full recovery!
KATE
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Shelly, at one point they thought something my husband had was that. It turned out not to be but in the course of discussing it the MO said many forms are very treatable.
Hang in there and keep us posted.
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: May 2007 Posts: 11 Member | | OP Member
Joined: May 2007 Posts: 11 | Just a quick update and thanks for your responses.
DH was admitted to the hospital this afternoon - he has "ALL" which is treatable but aggressive. He starts chemo tomorrow, and will be in the hospital for 2-4 weeks.
Shelly
CG to husband, age 58 (nonsmoker/seldom drinker), Dx SCC right tonsil and one node - tonsilectomy 5/15/07, Rx Cisplatin x 3 with IMRT x 35, Peg 7/6/07, last chemo 7/20/07 and last rad 7/25/07; PET scans clear until 4/10, 9/13/10 diagnosis of "ALL" leukemia, in hospital for 2-4 weeks treatment
| | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Hi again Shelly. I will keep you in my prayers. A good friend of mine has also been diagnosed with NHL"all" and has been in remission for going on 7 years now. It is extremly treatable.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: Nov 2010 Posts: 36 "OCF Canuck" Contributing Member (25+ posts) | | "OCF Canuck" Contributing Member (25+ posts)
Joined: Nov 2010 Posts: 36 |
55 yrs, Female, smoked for 4 yrs 35 yrs. ago, SCC right underside tongue and floor of mouth, laser surgery took 1/3 tongue Aug 2010, 3 weeks later in Sept right neck dissection 40 nodes removed with 1microscopic spot in one node. No chemo or radiation.
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