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EzJim #111017 01-26-2010 11:06 AM
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Yesterday I made bean and split pea soup with bacon . I wish the bites after the 1st one or 2 tasted as good. I kewpt it soupy and overcooked it so the beans were like mush. Buttered bread heavy and put the sooup over it to soak. Very easy to make and I guess good for you too.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #112599 02-17-2010 07:14 AM
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This morning, I added not only peanut butter to pancake mix but some peach preserves as well. It was very good but a different type of preserves might have been better. Somethinmg with a more pronounced flavor like raspberry or a stroger fruit flavor.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #112823 02-20-2010 07:12 AM
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Today I blended a can of peaches to a liquid and added it to the pancake batter, I added quite a lot and it had a great taste. I used plenty of creamry butter to it after it was done, It had great flavor, much better than preserves did.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #118929 07-03-2010 04:38 AM
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Bringing this back up to the top for newer patients.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2010
Posts: 153
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Great stuff on here. I have it better than many of you, in that I've had no surgery and I still have all of my tongue. I'm ~2.5 months from 7 weeks of radiation (33 sessions) with three rounds of chemo (Cisplatin). Did not require a feeding tube or port. Lost ~20 lbs during treatment.

My salivary function is very low (dry mouth). My taste has returned to a degree.

My tongue is heavily coated and I'm debating with myself if this might be an infection, or just a more-heavily coated tongue due to dry mouth.

Anything acidic triggers sore "water blisters" in my mouth and at the top of my throat, these may be "secondary salivary glands" that are plugged by damaged mucosa? Acidic things that I can't eat include tomatoes, salad dressing, red grapes, wine. Sometimes it just seems that eating too much of anything "solid" triggers these as well. It's difficult to predict what will set off my blisters and/or sore throat.

I've had good luck with bluberry pancackes and french toast (with lots of butter and real maple syrup), cheese and wilted spinach omlets with ketchup (ketchup is sweet enough to not sting?), rare filet mignon (it's very tender), rich salmon (mind the bones!), cucumber/cooked beets/blueberry salad (watch the dressing), melon (water, cantelope), steamed asperagus (again, lots of butter), baked sweet potatoes (with lots of butter), cottage cheese (good with honey, but there was a time when I coldn't eat this for some reason.....dry mouth? became a disgusting paste in my mouth), sweet yogurt.

Things like other cuts of beef, or beef that's not rare, and poultry tend to take on a "fibrous wad" character in my dry mouth and are very difficult to swallow, and drag on the way down with painful result. Also, anything that could be described as "massive and sticky" is a no-go: mashed white potatoes (you'd think they'd go down great), grilled cheese sandwich (even if chased with milk), ground beef.

Hope some of these are useful to some of you.

-Seth


47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
Stily1 #119004 07-04-2010 07:35 PM
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Seth, your coated tongue coould be thrush. Please ask your doc to check this. It takes prescription meds to clear this up.

You are doing very well with your eating and recovery.

Best of luck with continued improvements.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2010
Posts: 153
"OCF Canuck, across the pond"
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Posts: 153
Thanks ChristineB. Several weeks ago I had my Rad OC look at my tongue and he didn't think it was thrush. It's only on my tongue, and there is no associated tenderness. Also, it's been like this for quite a while and has not progressed or expanded. However, I would love to have it cultured just in case it's something like that. I will see what I can arrange.

Thanks again,

-Seth


47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
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Though not a gourmet food, spaghetti O's with meatballs was my first real food for a few weeks other than mashed potatoes and gravy. The tomatoe sauce is pretty watered down and didn't burn my mouth at all.

I am now trying to find something sweet I can eat, cake ,candy even cheese cake burns my mouth and ice cream/milk shakes taste terrible and I am not a big fruit eater


54 yr old male, Tongue and neck cancer , left side of tongue base and 1 lymph node on carated artery on the same side.Cells checked and they were HPV virous Positive. Dx 4/09 finished treatment in July 09, Clear cat scan and pet scan in june 10, also have MS Dx 8/08 and am type 2 diabetic.
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Are these food ideas okay during treatment too or just post treatment?

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This list is easy foods for those of us who struggle to eat. They are softer and usually not spicy so will be better tolerated in sore mouths. Its not specific to only after treatment. It would be good to eat for anyone with a sore mouth or any of the other issues faced by oral cancer patients.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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