| | Joined: Apr 2010 Posts: 9 Member | OP  Member
Joined: Apr 2010 Posts: 9 | I am posting on the recurrence forum since this is where I posted back in April when my Dad had his recurrence. With very heavy heart and profound sadness i am posting that my Dad, John, went to sleep holding my hand and woke up in the presence of God on 8/4. This after 10 months of dealing with cancer of the buccal mucosa. Although I was not a frequent poster due to time ( I was traveling far to be with my Dad and have young family 1500 mi away) I was a lurker and would come here to educate myself find encouragement. No regrets I spent so much time with him the last 3 months at times forsaking my own family to aid my only sibling to care for him. He passed away after waking up from unresponsive state to say goodbye to me and sister and joined loved ones that had passed but he could see in his living room. I miss him so much a have a huge void esp since mom passed 8 yrs ago from breast cancer. To all the survivors and caregivers... many prayers for strength...make each moment count.
Caregiver to Dad. 8/09 Stg 3 SCC of buccal mucosa.
T2N1M0 extracap spread
Surgery/RX complete 12/09
Reoccurrence 4/10 Stage 4 Mets to bilateral nodes & base of skull
40 rx & 2 rounds cisplatin
Hospice 7/29/10 .....died holding my hand 8/4/10
No smoke/No smokeless tobacco
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Netsky, I am sorry for the loss of your father. You were blessed with being able to say goodbye before he passed on. Hope the good memories will bring you some comfort.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | As I hold back the tears, a smile is also upon my face, knowing that your dad was able to say goodbye to you and your sister. I hope you continue to visit us here at OCF and wish you the best.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Netsky,
I am so sorry that your beloved Dad is gone. Your post is so touching---that you had the opportunity to say goodbye to him. That is something many will not ever get to do. You are a good man to have spent the time you had with him. I am sure that your Dad was comforted knowing you were there holding his hand.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 177 | Netsky, I am so sorry that your Dad is gone. Thank you for being there for him, spending time with him, loving him and seeing him through this. I know my thoughts are always how will my loved ones get by if I too have a reoccurance and they are unable to win. So my heart is broken for all of the caregivers here on the ofc forum. Thank you so much for helping us!
Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
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