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ChristineB #120746 08-20-2010 08:07 PM
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Barbara,

Woohoo--GREAT NEWS!!!!


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Posts: 1,412
I am so happy for you. Whooo Hoooo!!!


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
ChristineB #120785 08-21-2010 01:21 PM
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Posts: 875
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Posts: 875
DITTO from julieann grin


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #120879 08-23-2010 06:59 PM
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Posts: 101
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Posts: 101
So glad for you- Celebrate with a popsicle (vodka on ice-)just kidding- hope your tongue heals well.

Last edited by jennie; 08-23-2010 07:01 PM. Reason: spell

Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads.
Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol-
3rd reoccurrence 5/18/12- partial glossectomy
jennie #120886 08-24-2010 12:24 AM
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Posts: 138
Bloop19 Offline OP
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Thanks so much to everyone for your support. I guess I have another 2-3 weeks before my tongue heals again but it was sure nice to know what it was that was hurting. My daughter said I should try and keep my tongue still to avoid scar tissue developing again. In other words, she says I talk too much. But I am going to try really babying my tongue this time. I had actually thought I was supposed to exercise my tongue but I think it is my jaw that I have to exercise and keep my tongue as still as possible.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #120895 08-24-2010 10:37 AM
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Posts: 551
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I was given exercises specifically *for* my tongue! Tongue and jaw stretches were equally important, you don't want either one atrophying.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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Posts: 37
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Congratulation's! I am so happy for you!


Stage 1V scc of toncil 12/1/09
Peg in 01/18/10
35 rads 3 cisplatin
tx ended 03/02/10
Bloop19 #120951 08-25-2010 10:27 AM
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Posts: 92
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Posts: 92
Never thought I'd be glad that scar tissue would cause anyone problems, but I am this time. Very good to hear that's what has been causing your pain. Do well.


44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
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