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#120592 08-18-2010 05:10 PM
Joined: Jun 2009
Posts: 138
Bloop19 Offline OP
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Had another biopsy today. It is in the exact same place as my first tumor was. Is that common? Damn, I hope it's not malignant again but it probably is. The ENT cut out a great big chunk for pathology and OUCH. He said he would call me Friday. I could tell by the way he acted that he suspected it was cancer. But he said that's where the majority of the radiation was aimed. Does radiation help the cancer come back if it doesn't kill it? Oh I can't get the butterflies out of my stomach. I probably won't sleep until Friday.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #120602 08-18-2010 07:39 PM
Joined: Jun 2007
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Im sorry you are going thru this again. Hoping and praying the biopsy is negative. It could be scar tissue, lets hope so anyway. Your doc is extreemly fast if you will get the results Fri. Most biopsies take a week for the results. Radiation does not help cancer return, it kills everything in its path. If one tiny cell has hidden and was not hit then it will regrow.

Try your very best to stay busy and not let cancer steal away your time. I know how difficult that is but its in your best interest. Its not cancer til they say it is. Go out and live your life.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #120610 08-18-2010 09:25 PM
Joined: Jun 2009
Posts: 138
Bloop19 Offline OP
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Thanks Christine. Right now I am in so much pain I can't think of anything except cancer. The local wore off and my whole mouth just hurts like crazy including my gums and tongue and cheeks and everything. All from a hole under my tongue about half the size of a dime (from the biopsy). Should everything in my mouth hurt like that? Now I'm thinking the cancer is all over the place. I have Hydrochodone but it's not working. It's gonna be a long night.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #120612 08-18-2010 10:01 PM
Joined: Feb 2007
Posts: 790
"Above & Beyond" Member (500+ posts)
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Joined: Feb 2007
Posts: 790
So sorry to hear you are in pain. Please let your nurse know tommorrow so they can put you on something more effective. It isn't good for you to be in pain and not sleeping. Hang in there. Hoping for the best for you.

KATE


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
misskate #120649 08-19-2010 10:30 AM
Joined: Jun 2009
Posts: 138
Bloop19 Offline OP
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I did manage to get some sleep but when I woke up my tongue filled my entire mouth - and I'm not exaggerating. Is it supposed to swell up that much? I can hardly talk.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #120696 08-20-2010 04:29 AM
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
Barbara, I am so sorry you are going through this again. On the tongue swelling, mine swelled so bad that I had to go to the ER and get high powered steroids cause I could not even breathe and it was sticking out my mouth. Please, please, please keep us posted.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #120705 08-20-2010 07:58 AM
Joined: Jun 2009
Posts: 138
Bloop19 Offline OP
Senior Member (100+ posts)
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Joined: Jun 2009
Posts: 138
They just told me to put ice on it and I did that all evening last night. But it is swelled up again. I am going to call them when they open at 9:00 and tell them.

I am supposed to get results of biopsy today too. Oh how I pray it's scar tissue or an infection. Anything but more damn cancer.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #120707 08-20-2010 08:06 AM
Joined: Sep 2009
Posts: 177
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Sep 2009
Posts: 177
I am so sorry you are going through this! I know the fear your going through. Hang in there! I am sure they can do better for the pain. Tongue swelling, ah yeah, been there. That is one of my most unpleasent memories in all this.


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

wendys #120736 08-20-2010 04:17 PM
Joined: Jun 2009
Posts: 138
Bloop19 Offline OP
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Joined: Jun 2009
Posts: 138
Got the results and finally GOOD NEWS. No cancer, just scar tissue. I am so happy. Now, is there anything I can do to make this hole under my tongue heal better and not get the painful scar tissue or will I likely get a lesion thing there again after a few months? The ENT didn't say to do anything after the first partial glossectomy and now he didn't say anything about this biopsy, which was another big chunk of my tongue.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #120740 08-20-2010 06:18 PM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
YIPPPEEEE!!!!!!!

So happy to hear you got a break. No cancer, yeah!!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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