| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hey Everyone!!
Check out the events site on OCF site. We have alot of oral cancer walks going on this fall, maybe there is one by you.
We could use your support!
We have walks in Cleveland, San Diego, Andover NJ, Phoenix, Pittsburgh, Fort De Soto Beach FLA, Rhode Island, Bartlesville OK, Bethlehem PA and Camanche Iowa.
If you need more info let me know!
Thank you!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Susan,
You are doing a super job getting all of these walks going. You're the greatest.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Thanks so much Jerry!!! That means alot to me.
I am trying very hard to keep everything straight!!
So looking forward to seeing everyone at the Andover walk!!
Thinking of you all the time with all you having going on, remember to get enough sleep!!
Take care
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2006 Posts: 147 | Susan,
I was unable to see the dates of the walk on the events portion of the OCF site....would you let me know the date and the particulars on the walk in Bartlesville, OK?
thanks much!
Paula
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Paula,
I am sorry you had trouble, it is a new site, so next time just click on awareness events and all of them should come up.
The date for Bartlesville is October 16th. It is being organized by OCF member Angelia. YOu can contact her at bartlesvilleocwalk@@yahoo.com. Drop her an email when you get a chance, she would love the support!!
Let me know if I can be of any more help!
THanks so much,
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The events page has a really nice layout!!!! I love how it shows you all the events and can even break them into 3 catagories. Much better than the old page where only the walks were listed. http://www.oralcancer-screening.org/events/
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | The events part of the site has been working fine for the week that it has been up, after beta testing it with several people before it went live. The walk you are referring to does appear there in the awareness walk section. Here is the direct link. http://www.oralcancer-screening.org/events/index.php?com=detail&eID=63Some of the nice features of the pages are that sharing the page with others via an email or facebook or other mechanisms is a simple click to do. You can check the weather before the walk in one click, you can get directions to it and see a map of where it is. There are other features being added to the pages as Chester gets the software written in the next week or so.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jul 2010 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2010 Posts: 60 | Hi Susan,
I'd like more info about the walk in Pittsburg. I'll be finished my treatment 9/7 and don't know whether I'll be up for a walk or not. Where in Pittsburg is it? Any info on hotels close by?
Susan/59/nonsmoker /tonsil cancer spread to tongue,stage III diagnosed 6/10, HPV+ T3,N1 Finished 35 radiation and 7 cisplatin 9/7/10.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 |
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Susan, That would be great if you can attend, walking or not. Having your support and representing the OCF adds so much to these events. The walk is at Riverview Park. Not sure about hotels, but please contact Gaurav Shah, he is the organizer. Email him at [email protected]. I am sure he can help you with that. As Brian metioned, please go to the OCF events site at the link Brian mentioned. YOu can find more information there. If you need anything else, please let me know. I wish you all the best with the rest of your treatments!! Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
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