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#119641 - 07/22/10 11:02 PM question on free flap
lvredrock Offline
Contributing Member (25+ posts)

Registered: 09/27/07
Posts: 41
Loc: Bellevue, WA
I did not what area to post this in. As most of you know I had surgery to remove jaw and some tissue. They rebuilt my jaw with bone from leg. The tissue I do not know were that came from. I keep feeling like something in there and could something strange. Tonight I turn my phone flash light on. It has supper bright light. I look at the surgical area and was shocked what I seen. I had hair growing in my mouth. It freaked me out some, I went and found my twizzers and start pulling them out. I see my doctor next week and going to talk to him about it. Does any one know if this is normal or not? It was strange to see it there.
_________________________
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.

Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.

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#119644 - 07/23/10 12:24 AM Re: question on free flap [Re: lvredrock]
Bonniey Offline
Supporting Member (50+ posts)

Registered: 02/20/09
Posts: 81
Loc: Oregon
My daughter just went through the fibular flap surgery for her maxilla and she has the same thing. It is common as the tissue came from your leg from the area they removed the fibula, along with the blood supply and all. Your leg had hair on it and will grow hair, you can tweeze it or have it lazered later is what we were told. Kind of weird but normal.

Bonnie
_________________________
CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years

2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09

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#119646 - 07/23/10 06:52 AM Re: question on free flap [Re: Bonniey]
Pandora99 Offline
"Above & Beyond" Member (500+ posts)

Registered: 09/14/06
Posts: 808
Loc: Winnipeg, Manitoba Canada
I had my free flap taken from my leg as well, and although I have not encountered it, I hear from others that the hair on the tongue thing does happen. Normal compared to the rest of the world?? perhaps not. Normal for us? Yup.

Get it removed - hopefully permanently.

Hugs
_________________________
Donna, 56,SCC T2N1MO L tong 4/04 w/part gloss/nd; 32 rad tx; T2N2M0 new primary R tong-2nd partial gloss w/graft/nd 10/07;30 radtx/2 cisplatin compl 2/08.6yrs from 1st occur;2 yrs since 2nd. Surviving isn't easy,but I remain grateful for each day.Proudly Canadian & yes, socialized medicine IS good!

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#119648 - 07/23/10 07:49 AM Re: question on free flap [Re: Pandora99]
ESikon Offline
Gold Member (200+ posts)

Registered: 06/21/09
Posts: 218
Loc: Texas
Totally normal!
_________________________
Dx 3/27/09 High Grade MEC T4N2M0
Elizabeth, 30, mother of 3 girls (2,4,&6yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
4 scans and all clear!

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#119661 - 07/23/10 08:44 PM Re: question on free flap [Re: ESikon]
Susan3175 Offline
Supporting Member (50+ posts)

Registered: 04/21/10
Posts: 86
Loc: NY
My sister just had a forearm free flap to her tongue and sure enough hair is on it. I Don't think she is aware of it yet but her husband noticed it and freaked. Luckily I belong to this forum and found out from everyone that this is normal. Usually after radiation they are gone if not you can get them lasered.
_________________________
Susan CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, Trach and NG out 6/8/10, Home 6/9/10
8/18/2010 start erbitux x6, 30 IMRT.

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#119805 - 07/29/10 10:11 PM Re: question on free flap [Re: Susan3175]
EricS Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/02/09
Posts: 605
Loc: Idaho
Very normal. I have really hairy legs naturally so it's crazy to see all the hair that grows from the flap. Personally it doesn't bother me at all but I do warn people who look into my mouth so they are prepared for it.
_________________________
Young Frack, SCC T4N2M0 right molar diagnosed 1/24/08. 33 at diagnosis, nonsmoker, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche

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