| Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jun 2009 Posts: 138 | I finished chemo and radiation Jan. 22nd, 2010. I didn't lose any hair to speak of but I felt it got thinner in the back. Now five months later my hair is ridiculous looking. There are places where there is just stub and a few strings of hair over it. I don't even know when the stubs came in. I have been dwelling on being toothless and not paying much attention to my hair I guess. But now I am really comical looking. Has this happened to anyone else this far past treatment?
BOT-SCC Partial glossectomy 7/16/09. Stage IV, Rt ND 10/2/09. Teeth out 11/5/09. Port/peg in, 11/20/09. 7 wks rad & chemo, end 1/22/10 lung, colon biopsies 1/9/11 - both cancer colon resect surg 1/10/11 Folfox + Avastin - discontinued 6/11 lung surgery 3/13/12, 5/1/12 mets to liver and bones passed away 9/4/13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | When you go thru radiation, you will develop a bald spot. Think of how the radiation machine angled it towards you then make a direct line thru your head and thats when the exit place is. Thats the spot that you lost your hair and its now growing back. I didnt notice my bald spot right away either.
I have several place like what you are talking about. When I was hospitalize for 2 months, I developed several bald spots from always lying the same way. Now those bald spots turned into stubs of hair about 2" long. Sometimes, they stick straight out so I just wet them down to make it blend in.
Yea, being toothless takes alot of adjusting. Will you be able to get dentures or implants? ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I lost the hair on the back of my neck in the radiation exit path and I lost all my facial whiskers both above and below my chin line. Over time all grew back except the whiskers below my chin line.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | My hair is horrible to. I am not sure what fried. I can also tell you mine is not growing at all, and it is so hard to deal with.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | My situation is identical to David CPA. Must be the name.
D2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Sep 2009 Posts: 31 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Sep 2009 Posts: 31 | I got two bald patches on the back of my head & my hair went very very thin. My hairdresser advised me to take sea kelp & it has helped with the thickness of my hair & also my nails, which would just break.
Surgery to remove tumour from on top of saliva gland 3rd August 09. Biopsy revealed adinoid cystic carcanoma. Further surgery 28th September 09 to remove saliva gland, nerve to top lip (buccal branch) & scar tissue. Radiotherapy finished 30 Dec 2009 IXA x 33 (60gy).
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