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ChristineB #117499 06-06-2010 06:06 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Charles,

Where exactly are you in your Tx/recovery?



David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #117506 06-06-2010 09:22 AM
Joined: May 2010
Posts: 48
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: May 2010
Posts: 48
I will be starting dose 16 of 33 radiation treatments this week 57 gry to back of throat/65 gry to right side/ 56 gry to left side to be safe; using a TOMO machine. Already had 1 dose of cisplatin; will get 2nd dose this Wednesday. Had PEG tube placed this past Thursday; lost 13 lbs so far that's why I figured I needed the peg; tried to do it without it. Can still drink stuff by mouth but by the end of the day it was like poring concrete done my throat. My throat get's really dry during the night; only sleeping about 4 hours at a time; have sores on right side of tongue and some back of throat.


Charles

HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.

Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
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