| | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | Well, its back to my ENT on Monday. I have a sore on my tongue again that is refusing to go away. I am hoping that I am just being paranoid but this doesn't feel like a canker sore (i've had many of those since my surgery!!!) and doesn't quite look like one either. It feels a little too similar for my liking. I guess we will see what monday brings.....
Dx:06/08/07 SCC left Lateral tongue Stage I/II
Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker
07/17/07 CLEAR MARGINS!!!
05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10
04/07/11 Lump on neck.....ENT on 04/12/11
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hello Christopher:
We can't help being paranoid when something else pops up, especially in the area where trouble was before. But, it's been a while, so hopefully this is nothing bad; you have my prayers and thoughts with you. Let us know.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Apr 2010 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2010 Posts: 45 | Hi Christopher: If I had to count the number of times I've had strange lumps, bumps, ulcers, white patches, blisters, etc., that eventually went away within a couple of days or weeks, I could hire an ENT fulltime - I always have a maglite shining in my mouth after brushing my teeth I'm embarassed to say... Although everything bears checking out if it's been there for any length of time (we all know what our comfort zone is as far as what that timeframe is) remember we're all programmed at this point to think the worst. I agree that since it's been a while, be more optimistic. We'll all be thinking about you on Monday - keep us updated.
2002 - SCC - T1N0M0 - ever vigilant
| | | | | Joined: Apr 2010 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2010 Posts: 38 | Hi Christopher,
Since your cancer was caught so early the first time, it seems as though you were pretty proactive about it. I'm sending nothing, but good and happy thoughts your way! Glad you're getting it checked out. I have learned my lesson; when someone tells me that they feel a lump or a bump, I say "Get it checked out!" It's better to be safe than sorry! Good Luck on Monday and let us know how it goes!
Scootersmom, you're too funny with the maglite! That's a good idea. Maybe I'll try that one out:)
Cancer found on left bottom portion of my tongue on March 9th. Non-smoker and light drinker. Tumor removed March 30th. Stage 1. No chemo. No radiation.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 148 Likes: 1 | Hi Christopher, Don't you just hate waiting? Not knowing can make for a very long weekend! I sure hope you walk out of the ENT office on Mon. with good news & this worry lifted off your shoulders. I fell apart & cried my eyes out when I felt a bump in my cheek. Thank goodness all I have left from that ENT visit is a $120 bill ! The bump just disappeared. All my best wishes for a great outcome.
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | I am very definitely hoping and praying on this one.....and like I said I have had my fair share of sores like everyone, but this looks and feels way to similar.....I do hope I am being paranoid!!!! But sometimes you just get a feeling you know? Again I am hoping my feelings are wrong (I have been known to be wrong about things before....just ask my wife about that!!!!!!) but whatever it is we will take whatever comes!!
Thanks for all your support and positive thoughts!!
Dx:06/08/07 SCC left Lateral tongue Stage I/II
Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker
07/17/07 CLEAR MARGINS!!!
05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10
04/07/11 Lump on neck.....ENT on 04/12/11
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | It could be any number of non cancerous things. If it does turn out to be a recurrance, you did it once and can do it again!!!! You were treated with only surgery in 2007 so you have many options available for treatment if it is back.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 |
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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