#125123 - 11/23/10 02:10 AM
Re: Caregivers need to take care of themselves also
[Re: Elianne]
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Member
Registered: 11/23/10
Posts: 4
Loc: Toronto, Ontario, Canada
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Appreciate this first step for dementia caregivers who need caring for themselves. Thanks to other for notifying this world about caregivers hard work and risk factor about physical and mental point of view.... Hope people appreciate and help caregivers to caring there own health too.
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#147107 - 03/14/12 05:45 AM
Re: Caregivers need to take care of themselves also
[Re: Elianne]
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"OCF Down Under"
Supporting Member (50+ posts)
Registered: 11/30/11
Posts: 55
Loc: NSW Australia
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This post was what, 2 years ago? This is exactly what is happening to me right now -- the post treatment caregiver fall apart. I just didn't see it coming. Hate it when that happens.
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CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. There is light at the end of the tunnel.
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#147108 - 03/14/12 07:59 AM
Re: Caregivers need to take care of themselves also
[Re: lam007]
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"Above & Beyond" Member (500+ posts)
Registered: 07/15/11
Posts: 707
Loc: Ohio
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Yeah, well don't be like me - I got all sorts of autoimmune issues that almost crippled me for a while. Ugh. Remember the person in the mirror every morning needs good care too. Of course, that requires that you even notice the person in the mirror.
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Caregiver to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 and 3/2012 clear, 1/2013 physical exam clear
On thyroid pills. Getting slightly less sensitive to hot peppers, and can handle sweet hungarian paprika again. Life is good.
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#147121 - 03/14/12 02:04 PM
Re: Caregivers need to take care of themselves also
[Re: Maria]
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"OCF Down Under"
Patient Advocate (1000+ posts)
Registered: 08/02/07
Posts: 1189
Loc: Sydney NSW Australia
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So sorry to read that you are going through "post treatment fall apart" Laura.
Seems that this happens to most caregivers.
May I suggest starting a new thread under Caregiver/Co-Survivor Forum and ask questions, vent or whatever it takes?
I suspect you will get plenty of help from people who have walked in your shoes.
Love and hugs (PM me if you like)
Gabriele
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Leukoplakia bx dx 8/2006 SCC floor of mouth/tongue T3N0M0- Verrucous Carcinoma.
14 hour 0p-right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
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#147752 - 04/03/12 06:32 PM
Re: Caregivers need to take care of themselves also
[Re: Elianne]
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"OCF Down Under"
Gold Member (200+ posts)
Registered: 08/19/09
Posts: 207
Loc: Melbourne, Australia
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Thank you for caring about carers Charm...xxx
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Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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