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#125123 - 11/23/10 10:10 AM Re: Caregivers need to take care of themselves also [Re: Elianne]
Alan Nicole Offline

Registered: 11/23/10
Posts: 4
Loc: Toronto, Ontario, Canada
Appreciate this first step for dementia caregivers who need caring for themselves. Thanks to other for notifying this world about caregivers hard work and risk factor about physical and mental point of view.... Hope people appreciate and help caregivers to caring there own health too.

#147107 - 03/14/12 12:45 PM Re: Caregivers need to take care of themselves also [Re: Elianne]
lam007 Offline
"OCF Down Under"
Supporting Member (50+ posts)

Registered: 12/01/11
Posts: 60
Loc: NSW Australia
This post was what, 2 years ago? This is exactly what is happening to me right now -- the post treatment caregiver fall apart. I just didn't see it coming. Hate it when that happens.

CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.

#147108 - 03/14/12 02:59 PM Re: Caregivers need to take care of themselves also [Re: lam007]
Maria Offline
"Above & Beyond" Member (500+ posts)

Registered: 07/15/11
Posts: 877
Loc: Ohio
Yeah, well don't be like me - I got all sorts of autoimmune issues that almost crippled me for a while. Ugh. Remember the person in the mirror every morning needs good care too. Of course, that requires that you even notice the person in the mirror.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 06/2014 physical exam clear; chest CT's clear of cancer. On thyroid pills. Saliva slowly returning. Life is good.

#147121 - 03/14/12 09:04 PM Re: Caregivers need to take care of themselves also [Re: Maria]
Gabe Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Registered: 08/02/07
Posts: 1291
Loc: Sydney NSW Australia
So sorry to read that you are going through "post treatment fall apart" Laura.
Seems that this happens to most caregivers.
May I suggest starting a new thread under Caregiver/Co-Survivor Forum and ask questions, vent or whatever it takes?
I suspect you will get plenty of help from people who have walked in your shoes.
Love and hugs (PM me if you like)
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
Surgery GIST 8/2013

#147752 - 04/04/12 01:32 AM Re: Caregivers need to take care of themselves also [Re: Elianne]
Jeanna F Offline
"OCF Down Under"
Gold Member (200+ posts)

Registered: 08/19/09
Posts: 207
Loc: Melbourne, Australia
Thank you for caring about carers
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.

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