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#116890 05-18-2010 02:07 PM
Joined: Apr 2008
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Dorothy Offline OP
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I am almost two years out of treatment and am feeling a little concerned after reading about follow-up care that everyone else seems to be getting. My health insurance ran out and I've just moved back to Canada and there is a two month waiting period for coverage. The only care I was advised to have is a yearly chest x-ray and thyroid function test. I still have trouble eating solids, mainly gagging to the point of throwing up. Just wondering if I shouldn't be concerned.

Dorothy


SCC, primary left tonsil, lymph nodes on left side, Dx 02/11/08, T2N2bM0 Finished treatment July 9 2008
Dorothy #116893 05-18-2010 03:09 PM
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Many people suffer from swallowing disorders following our Tx so that's what I might want someone qualified to look at.

I also still get scoped twice a year and am seen every alternating 6 months by my radiation oncologist or an oral surgeon at my treating facility, Moffitt Cancer Center and I'm coming up on 4 years post Tx so I would ask for more regular and thorough screenings if I were you.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #116896 05-18-2010 04:06 PM
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I am almost through my second year (~21 months). I see my ENT every other month and a RO every six months.

After my next appointment in July, my ENT visits drop to every three months. My RO visits will stay at every six months at least through my third year.

I was just scheduled for another PET/CT scan and told if all goes well it could be my last PET/CT.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

DonB #116899 05-18-2010 04:08 PM
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I am 3 yrs out soon and still see my Oncologist and ENT both every 3 months. Saw the ENT this morning.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #116930 05-19-2010 12:27 PM
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Dorothy Offline OP
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Thanks David, Don and Jim. I'll see if I can get in to see a doctor soon.


SCC, primary left tonsil, lymph nodes on left side, Dx 02/11/08, T2N2bM0 Finished treatment July 9 2008

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