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SusanW #116087 04-29-2010 07:13 AM
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Don't feel guilty about not having side effects!! Everyone is different. I had relatively few side effects -- continued to work throughout the course of radiation and chemo, and never had a PEG tube. Best wishes for the rest of your treatment!!


Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
Baymamma #116092 04-29-2010 09:46 AM
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Julia:

How coincidental. My real name is Julia, but am called Julie and Julieann. I live in New Market, AL, just 10 mins from Huntsville, where I previously lived for over 40 years.

julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
SusanW #116094 04-29-2010 09:56 AM
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Radiation techniques can vary and guidelines can be found in the NCCN Clinical Practice Guidelines for H&N cancer.

A copy of the 2009 guidelines can be found on the OCF site at http://www.oralcancerfoundation.org/treatment/pdf/head-and-neck.pdf

An updated 2010 copy can be found on the NCCN site (google NCCN Guidelines).

Conventional fractionation for concurrent chemo-radiation is 70gy to the primary tumor/tumor-bed and involved nodes in 2.0gy daily fractions and 44-64gy to the uninvolved nodes that may be known drainage nodes for the primary, or are located nearby (and/or suspect occult area) in 1.6-2.0gy daily fractions.

OCF will have the new 2010 guidelines up on thee links by Monday. We just received the 2010 changes from NCCN who we have a formal agreement with. BH

Last edited by Brian Hill; 04-29-2010 02:21 PM. Reason: Updated Guidelines

Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

SusanW #116095 04-29-2010 10:24 AM
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Thanks Susan, I asked my RO about the amount of RT that I was receiving b/c I was concerned that it was enough "juice". I am having IMRT for 39 treatments, the last 14 are a boost to my voice box only. He dropped off my lymph nodes after 25 treatments. I have been able to eat basically anything I want the whole time and doc thinks that is one of the reasons I am handling the treatments so well. I do have a very high pain thresh hold . I have actually gained 5 lbs. Every week I think this is the week I will hit the floor and now I am running out of weeks. This is a good thing !


58 yrs Female
Vocal cord cancer T1NOMO
DX 3/05/10
Started TX 3/18/10 with IMRT 39 total treatments
Smoker- quit at DX No PEG
Baymamma #116124 04-30-2010 06:23 AM
Joined: Sep 2006
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Most get the max radiation which is appx 70 Gys and that is spread over usually 7 weeks, 5 days a week or 35 treatments. So 70 divided by 35 = 2 Gys per day avg. Some RO's accelerate the radiation by doubling up on one day of the week, usually Friday, and by doing so they hope the extra radiation (boost) will have more of an impact and therefore they shorten the weeks by one.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #116130 04-30-2010 10:43 AM
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Thanks David for the info. I did ask today what my gy was and you were right, it is 70gy. I only have 7 more treatments for a total of 39 which puts me close to 8 weeks total treatment time. Then I get to wait for the PET scan at 2 months. I guess these rechecks will be scary but I might as well get used to them early on. I am assuming the IMRT is one reason I have not had such horrible side effects. I look forward to saying mine treatment was YEARS ago !


58 yrs Female
Vocal cord cancer T1NOMO
DX 3/05/10
Started TX 3/18/10 with IMRT 39 total treatments
Smoker- quit at DX No PEG
julieann #116135 04-30-2010 02:19 PM
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Oh my goodness ! My brother calls me Julie as did my mother. I am a 3rd generation Huntsvillian that relocated to the Gulf Coast when my husband retired. Used to come to New Market and get watercress years ago. I still have lots of family and friends in Huntsville. My maiden name was Love, went to HHS and my family had the old Twickenham Hotel downtown before it was torn down for the parking garage. My 40 year class reunion is coming up this summer. It is a small world sometimes, huh !


58 yrs Female
Vocal cord cancer T1NOMO
DX 3/05/10
Started TX 3/18/10 with IMRT 39 total treatments
Smoker- quit at DX No PEG
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