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#115544 04-16-2010 01:33 PM
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I woke up this morning to grey gums in the front of my mouth. I went to a dentist today and he had no idea what it could be even after I told him my history. This is not my normal dentist as he is out of town and the dentist I went to is the one he refers to when he is out of town. None of my other Drs are in the office today. Is it normal for the gums to turn grey and be painful. I am going to see my regualr dentist next week, but I am afraid I am going to lose a tooth before that as it is really lose. I also called a periodontist and they are going to tryo to get me in next week. Unfortunately I am limited when I can go because I am giving tests all week. Anyway any ideas?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #115556 04-16-2010 04:22 PM
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Hi Angelia:

I did a "search" and there were quite a few entries concerning grey "tongue," possibly associated with circulation problems. Maybe the grey gums is something like the grey tongue? Check it out.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #115603 04-17-2010 02:13 PM
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Went to after hours clinic today and the Dr. there said that my RO needed to take a look at it ASAP. He did not like the way it looked, and wrote me a script for antibiotics in case it was an infection, but none of the pharmacies can fill it until Monday. ARGH!! I will seeing the RO on Monday anyway so I will just have to wait and see what he says.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #115608 04-17-2010 04:21 PM
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Posts: 2,152
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Angelia,
Don't you have a CVS, Target, Walgreens, Costco etc. in your area? I know all their pharmacies are open on weekends in NJ and some other states. There is always the emergency ward if all else fails.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Eileen #115617 04-17-2010 06:42 PM
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I do, but they do not make the liquid tetracyclene.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #115618 04-17-2010 06:44 PM
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There are several other antibiotics that come in liquid form. I had taken one for about 2 months before I got the IV antibiotics. Anyway, are you ok to swallow pills? Dont forget that when you are thinking about having your PEG tube removed. Can you call the doc and have them write something else? It would save you from having to wait a few days to start meds.

Hope you feel better soon.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #115620 04-17-2010 06:50 PM
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Who knows. My oncologist will be back in his office Monday and I will probably go see him as soonas school is out. Yeah I was thinking about having my tube out, but I think I will wait until I find out what is going on with my teeth as the greying is spreading, and the ear pain has come back.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #115622 04-17-2010 06:53 PM
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Its a very odd symptom. I get a grey tongue every once in a while and its due to circulation issues and when Im cold. Weird, I can eat soft serve ice cream without a problem. Hope you find out what is causing this.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #115640 04-18-2010 03:01 PM
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Well that grey part of my gum just fell off today after burshing my teeth. Underneath it was pink, but not sure if it going to turn again or not. Leave it to me to get all the streng symptoms that no one else has had. smile


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #115648 04-18-2010 06:18 PM
Joined: Jun 2007
Posts: 10,507
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Very very odd!!!!!

Oh yeah, almost forgot we were talking about you, Angelia. LOL smile You sure had more than your share of extreeme side effects. Hope thats the end of the mystery.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #115697 04-20-2010 06:36 AM
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Posts: 1,412
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LOL, mystery solved, but I am going to have surgery to repair my gums so I do not lose my teeth. The grey gum thing was a reaction to some desensitizer the dentist put on my teeth. The Periodontist did say that my gums are receding due to the rads. He said that if I wanted to save those teeth i would need some surgery done on them. Finally got to someone that knew what he was talking about. I got back in 4 weeks and we will schedule surgery then. I have already talked to my RO, and waiting to hear back about what I do for surgeries.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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