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#115415 04-13-2010 02:21 PM
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I may be missing the boat but what is the official oral cancer awareness wristband on this site or any other site? I have seen colors from yellow, to blue to....what is (or are) the colors for OC (burgundy/ivory)? And are there other choices besides the silicone wristbands? (i.e. leather material).


CG/Carol 57;SCC Stage IV L Tonsil T4N2bM0 12/2009
Recur 7/2010 - 2cm mass Invasive SCC L Floor Lower Jaw
Surgery 8/10 - Trach,ND,p. mandibulectomy,pec flap
ypT4aN0 HG Mucoepidermoid carcinoma
2nd Recur 1/18/11 - Tumor lower left lip
Surgery 2/9/11 - Canceled - Inoperable
3/29/11 - Died




ElCee #115421 04-13-2010 05:55 PM
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That's an excellent question that I don't have the answer to either. On one site the bracelet is red, on another site the bracelet is a teal blue. The ribbon that I have seen the most often is a red and white stripe. Confusing, much?? I have seen beaded versions of bracelets/necklaces, but I have not seen leather. Most "awareness" sites don't even have a category for Head and Neck Cancer or Oral Cancer. My husband wore a Livestrong bracelet from the day of his first surgery until the day he died.
Lori


Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
lorileona #115426 04-13-2010 07:21 PM
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This question has been asked here many times before, and for years we have stayed away from doing anything like this. There are over 7,500 registered trademarked colors on ribbons etc. for causes that most of us never have heard of. At the end of the day we have in the past stayed away from this because other than pink, breast cancer, red AIDS, Yellow Lance Armstrong's foundation - no one really knows what the hell you are wearing and unless they ask you about it they will never know.

Another H&N organization put up on their own, without checking with anyone else in the arena, a burgundy creme burgundy striped ribbon to wear. You don't see them very much, and again, no one outside of a very small group of people even know what they stand for. Another H&N organization has a purple ribbon. Bottom line no one knows. As to the teal one.... from a blog site that has been around less than a year, that was probably picked because it matches their web site, since no one in the 13 years I have been involved in this has ever seen it. Some people just want to be putting out their own "brand" and are not really team players with others in the arena.

As to the material, silicone rubber is used, and not leather because it is indestructible in water or wherever. My prototype 11 year old one has been beat to death, and like a Timex it takes a licking and still delivers it message while looking brand new today, and it's never been off my wrist.

We picked burgundy since it was sort of out there already related to head and neck, but no one wants to wear a multicolor band with a suit (I have worn my yellow original prototype LiveStrong bracelet that Lance gave me before they were even sure they were going to do them a decade ago, every day since with suits or shorts.) Would I wear a multicolored gaudy band in every situation I have been in for the last decade working on this disease? No. Simple look, simple statement that has some meaning, not advertising any particular organization works best in my book. When we picked our wording we thought what everyone involved with the cause could get behind. WE ALL WANT TO MAKE ORAL CANCER HISTORY... SOMETHING IN THE PAST. OR IF YOU ARE A RESEARCHER, SOMETHING THAT IS YOUR GOAL, WITH BREAKTHROUGH KNOWLEDGE OR IDEAS.

We picked a saying that was generic to an idea, not to OCF. That makes them good for many people in the H&N world to use. They were originally designed to be given away in April to donors and at our events, but the demand in the last 2 weeks since we have announced them has been overwhelming. Will we trade mark the color to OCF, or to the disease? Not a chance. At the end of it all, hopefully people will ask you about it when you wear it. And if other organizations want them we will give them to them.

I get asked all the time about my buttons that I wear on my jackets that say, Have you had one?, Dental exams save lives, Is a killer hiding right under your nose? None of which say oral cancer, but all of which are designed to make people curious enough to ask me what they mean. Then watch out, they are definitely aware of oral cancer when I am done explaining it to them.

We are already considering ordering a second batch of these given the initial response. I hope that at least with those of us in the community they catch on. We need people to talk about this disease. We need to raise awareness of it and the risk factors. We need to remember the toll it takes. We need people to have discussions with of us that know how horrible this disease is. It isn't a fashion statement, it is a tool.

Make oral cancer history. That's our saying on these, and I hope I live to see it be a reality. Since this is oral cancer awareness month, any donation to OCF gets you a wristband in return plus your tax credit for your donation from uncle Sam. After April they will be for sale in the web store on the main site. Cheap, the idea is to get the message out there.

So for those of you that are ready to be the pointy end of the spear in changing all this, please jump into the discussion and use our bands or buttons to get the dialog started, YOU CAN MAKE A DIFFERENCE THROUGH WHAT SEEMS LIKE A SIMPLE ACT, AND A BIT OF KNOWLEDGE PASSED ON TO OTHERS.

Last edited by Brian Hill; 05-25-2010 06:17 PM. Reason: added additional comments

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Brian Hill #117145 05-25-2010 11:01 AM
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The wristbands are now available for purchase in the OCF webstore- the official Oral Cancer Awareness wristbands! With the embossed message- "MAKE ORAL CANCER HISTORY". Help the OCF spread awareness of oral cancer by proudly wearing your wristband.

http://www.ocfstore.org/wristbands_p/ocf_wristband.htm
[img]http://www.ocfstore.org/v/vspfiles/photos/OCF_wristband-2T.jpg[/img]

Last edited by MeganCannon; 05-25-2010 11:01 AM.
#117155 05-25-2010 02:40 PM
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I just ordered a 10 pack. I'll take them to the next SPOHNC meeting, along with the OCF literature I am expecting any day now.

I wear a LiveStrong bracelet and a SPOHNC bracelet - the maroon stripe is wearing off of the beige SPOHNC one.

Last edited by MikeC; 05-25-2010 02:42 PM.

Survivor. 55yr male. Dx 07/09 SqCCa Stage IV, Rt Tonsil, Lt&Rt Lymph Nodes. Aborted tonsilectomy 07/09. Chemo port 07/09. PEG 09/09. Chemo - 3xCisplatin 6xErbitux. RTx35. Tx ended 11/09. CAT scan (clean) 01/10. PET scan (clean) 02/10. Port & PEG removed 04/10.
MikeC #117158 05-25-2010 03:47 PM
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THanks MIke!!!


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
Susan Lauria #117159 05-25-2010 06:18 PM
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Please take a minute to re-read my post about these bands. I re-wrote part of it since someone asked about the color and the whys of it all.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Brian Hill #117167 05-26-2010 03:52 AM
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I just ordered some bracelets. Cant wait to get them.

There are many other nice items for sale too. I picked up some notecards and a tshirt also.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #117198 05-26-2010 04:35 PM
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Order leaving CA today. Thank you for your support. This little stuff pays the bills. It all counts, and we are very appreciative of the support.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Brian Hill #117228 05-27-2010 08:38 AM
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As soon AS I GET FINISHED WITH THE SALE OF MY HOUSE AND THE PURCHASE OF a new home, I will be placing an order for my family which should be a few of them plus I have to order new shirts too. Have a great warm day all.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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