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#115037 04-06-2010 01:56 AM
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I am cold all the stinking time. I have to wear a thick coat and I am still cold. Could that be due to my thyroid?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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It certainly could be. My daughter and my mom both have hyopthyroid and I am flirting with it myself now. Neil had it after the rads were over for a year. I understand that sometimes it takes awhile for the gland to suffer from the radiation. He was put on a low dose synthetic hormone and that seemed to help with the symptoms. His was found during the bloodtests he was having prior to chemo.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
suemarie #115046 04-06-2010 05:54 AM
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Brrr - I remember freezing all the time. My CCC doctors all said it was just a side effect of the TX and would get better. While my CCC doctors were top notch on Cancer, for related issues like Thyroid - "not so much". I froze for two years, even in summer, and kept a winter coat on in air conditioned places yet I was constantly told: "Your TSH levels are normal" and I did not ask for the actual numbers or test results. Turns out however there is controversy over what is the right TSH level with labs having a 5.5, a 4.5 even though endocrinologists who went to Medical school in the 21st Century consider 3.0 as the highest acceptable level. Before TX, I had a TSH of 1.6 and after TX it shot up to 4.3. Now that I am "on the pill", I am finally warm again.
Charm

Last edited by Charm2017; 04-06-2010 05:55 AM. Reason: typo

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Angelia: I second what Charm said!! I can't believe how frozen I was and am now on thyroid pills - FINALLY. I believe if it wasn't for a few minutes that an intern spoke with me, this would never have gotten caught. In general conversation she picked up my symptoms and put them together. In Canada, complaining of being "cold" doesn't exactly raise any eyebrows!!

My GP however is one of those that Charm talks about who thinks that they just need to bring the level down within the "normal" range and not back to the pre tx 1.6 level. Thank God I have the baseline. I will be pursuing this with my RO and GP, but I am early in taking medication for this problem and apparently it takes awhile to get the levels correct. I will, thanks to this forum (and Charm of course) pursue this until I feel better.

Definitely look into it.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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My husband complained of always being cold. One of his doctors ran a series of blood tests and determined that he was hypothyroid due to his treatments. Ask your doctor test your thyroid function if he has not done it recently.


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Donna,

That was one of my symptoms before I was Dx'ed with hypo. I now take a one a day pill but since I didn't have a pre Tx TSH level to compare my current readings to I still wonder if I am being given the proper dosage.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #115109 04-07-2010 01:56 PM
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Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #115119 04-07-2010 04:21 PM
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Isn't it amazing that 7 years ago the recommendation was to lower it to 3.0 as the high range and that Pete's article was 4 years ago, yet most cancer doctors have not gotten the word. (or if they know about it, just smugly rely upon their medical school training from the last century )
I can't believe that the CCCs do not all take pre-TX TSH blood tests as part of standard practice which then leaves the majority of patients in DavidCPA's situation. I had to leave my CCC and get an endocrinologist who went to medical school in the 21st century to get treatment.
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Hows your blood counts? It could be anemia. My blood levels have never returned to normal after getting chemo 3 years ago. That can make you feel lousy and cold.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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I was cold the last 2 summers and slept covered with a sheet and lite balnket. Now I just sleep as born and am comfortable. LOL. I thank the workouts I do for the change altho I could be wrong. yes David, I can be wrong. LOL J/K.. Jerry will be on me for that one.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #115135 04-07-2010 07:16 PM
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I refuse to discuss your sleeping habits, Jim.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
wilckdds #115153 04-08-2010 05:54 AM
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I estimate that it will take weeks of sleepless nights to get that picture out of my head!! Thanks for sharing that Jimbo.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #115176 04-08-2010 10:32 AM
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LOL.. but I am so cute when...

Last edited by Gary; 04-08-2010 08:46 PM. Reason: inappropriate and off topic

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #115220 04-08-2010 08:49 PM
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Back on topic. Thyroid could be one but IMO weight loss is the biggie. Having a wife that weighs barely 100 lbs and is cold all the time, i didn't appreciate what lack of body fat did until I was cold all of the time. We kept the thermostat at 82 degrees for quite a while.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #115236 04-09-2010 06:09 AM
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I agree with Gary that losing that protective layer of fat is big factor in being cold. My wife is also very slender at 104 lbs and 5'4" and like Gary, I never really understood just how cold she found "regular" air conditioning until I had to wear a full winter coat inside AC chilled places. I had never really been cold before the Cancer even though I was slender also.
But it became abundantly clear that weight loss just did not account for how cold and weak I continued to feel until I started on the thyroid pill. I don't weigh even one pound more than when I finally got thyroid medication yet I am now warmer than my wife. If my doctors had not all been so quick to blame weight loss for being cold, I could have started being warm and energetic much earlier.
I think there is a synergistic relationship between weight loss and thyroid damage that amplifies the negative effects of each. Like in Math quizzes, both factors of the equation need to be balanced to solve this problem
Charm

Last edited by Charm2017; 04-09-2010 06:10 AM. Reason: typo

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jun 2007
Posts: 10,507
Likes: 7
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If your white count is 2.8 thats probably why you are cold.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 1,412
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Love the math example. You must of known I teach math to middle school special ed kids. UGH. When I have more blood work done, I will ask them to check the TSH levels if they will. They may not since it was not ordered. I go back to one of my many Drs in May and will ask about it then as well, if I remember. darn chemo brain. I even wrote down a list of questions to ask and forgot that at home too. UGH. Both sides of my equations are not balanced yet. Sometimes I wonder if they ever will again. smile


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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Posts: 2,152
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Most labs keep the blood samples for a week. If it is less than a week, the doctor's office simply needs to call and request the thyroid test INCLUDING TSH level. They must specify TSH because most thyroid tests do not include it.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Eileen #115376 04-12-2010 02:32 PM
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I too had a doctor who thought that getting the TSH level into the normal range (<4.0) was sufficient despite my complaints of symptoms.
After several years,I finally self referred to an Endocrinologist and he increased my Synthroid dose to get me down to 2.0. I feel great now.
My hands are no longer like ice, I'm comfortable, my LDL cholesterol has dropped 25 points, dry skin has cleared up...it's pretty amazing.
My oncologist is not an endocrinologist, and neither is my GP.
See someone who handles thyroid issues professionally if you think you have a thyroid issue and your Rad/Onc team isn't addressing it.

Good Health,

Chuck


SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun.
It's always something
"Adversity doesn't build character, it reveals it."
EzJim #115474 04-15-2010 07:00 AM
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angelia, I live is southern calif and I was VERY cold for a while. I use to put a space heater in the bathroom just to take a shower. I did not have a thyroid problem, I just lost so much meat, I was skin and bones (almost)I still rarely wear shorts, and always sleep with a long sleeve tee where as I use to sleep "sans chemise". It is getting better. Glad I live here, I would have frozen solid if I lived in the cold country!

Steve

Last edited by tristeve; 04-15-2010 07:18 AM.

70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




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