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#115037 04-06-2010 01:56 AM
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I am cold all the stinking time. I have to wear a thick coat and I am still cold. Could that be due to my thyroid?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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It certainly could be. My daughter and my mom both have hyopthyroid and I am flirting with it myself now. Neil had it after the rads were over for a year. I understand that sometimes it takes awhile for the gland to suffer from the radiation. He was put on a low dose synthetic hormone and that seemed to help with the symptoms. His was found during the bloodtests he was having prior to chemo.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
suemarie #115046 04-06-2010 05:54 AM
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Brrr - I remember freezing all the time. My CCC doctors all said it was just a side effect of the TX and would get better. While my CCC doctors were top notch on Cancer, for related issues like Thyroid - "not so much". I froze for two years, even in summer, and kept a winter coat on in air conditioned places yet I was constantly told: "Your TSH levels are normal" and I did not ask for the actual numbers or test results. Turns out however there is controversy over what is the right TSH level with labs having a 5.5, a 4.5 even though endocrinologists who went to Medical school in the 21st Century consider 3.0 as the highest acceptable level. Before TX, I had a TSH of 1.6 and after TX it shot up to 4.3. Now that I am "on the pill", I am finally warm again.
Charm

Last edited by Charm2017; 04-06-2010 05:55 AM. Reason: typo

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Angelia: I second what Charm said!! I can't believe how frozen I was and am now on thyroid pills - FINALLY. I believe if it wasn't for a few minutes that an intern spoke with me, this would never have gotten caught. In general conversation she picked up my symptoms and put them together. In Canada, complaining of being "cold" doesn't exactly raise any eyebrows!!

My GP however is one of those that Charm talks about who thinks that they just need to bring the level down within the "normal" range and not back to the pre tx 1.6 level. Thank God I have the baseline. I will be pursuing this with my RO and GP, but I am early in taking medication for this problem and apparently it takes awhile to get the levels correct. I will, thanks to this forum (and Charm of course) pursue this until I feel better.

Definitely look into it.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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My husband complained of always being cold. One of his doctors ran a series of blood tests and determined that he was hypothyroid due to his treatments. Ask your doctor test your thyroid function if he has not done it recently.


Naomi Levine
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Donna,

That was one of my symptoms before I was Dx'ed with hypo. I now take a one a day pill but since I didn't have a pre Tx TSH level to compare my current readings to I still wonder if I am being given the proper dosage.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #115109 04-07-2010 01:56 PM
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Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #115119 04-07-2010 04:21 PM
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Isn't it amazing that 7 years ago the recommendation was to lower it to 3.0 as the high range and that Pete's article was 4 years ago, yet most cancer doctors have not gotten the word. (or if they know about it, just smugly rely upon their medical school training from the last century )
I can't believe that the CCCs do not all take pre-TX TSH blood tests as part of standard practice which then leaves the majority of patients in DavidCPA's situation. I had to leave my CCC and get an endocrinologist who went to medical school in the 21st century to get treatment.
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jun 2007
Posts: 10,507
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Hows your blood counts? It could be anemia. My blood levels have never returned to normal after getting chemo 3 years ago. That can make you feel lousy and cold.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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I was cold the last 2 summers and slept covered with a sheet and lite balnket. Now I just sleep as born and am comfortable. LOL. I thank the workouts I do for the change altho I could be wrong. yes David, I can be wrong. LOL J/K.. Jerry will be on me for that one.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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