| | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 76 | rad and chemo treatments ended in february- how soon after treatments end is the first PET? and how often after that do they take place?
thanks!
*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Never had one post Tx. Had a few scans with contrast but no PETs other than 2 dogs, 8 cats and a rab.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Mostly depends upon the doctors. I had Petscans at 3 months and 6 months out (my RO & MO) and a MRI within a month (ENT).
In my case both the Petscans were worthless, falsely indicating cancer on the right side while the MRI was clear. But that is common for Base of Tongue cancer patients. Subsequent Petscans completely missed the tumor recurrence on the left side, but an MRI caught it. I wish my doctors had been as knowledgeable as David's appear to have been about BOT Petscan false positives and never ordered any on me.
The above is supposed to be reassuring to you in case the doctors do not order a Petscan or if the results appear bad.
I admit to a big bias in favor of MRIs which have been extremely accurate for me. Do a search on Petscan in the box on the upper right to catch up on prior posts on this if you want a quick overview of OCF experiences.
Good luck
Charm
Last edited by Charm2017; 03-22-2010 08:05 AM. Reason: typo
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I think my timeline was about like Charms. Thro in an Mri and a CT scan too
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | My doctors will not do PET scans on me, only CT's They said they get to many false positives.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 76 | ah i guess i just assumed it was always PETS but i guess you are all right, it will likely be a combo. so i guess its a few months wait. why is that? is something happening over the few months after treatments end that they wait?
i would just think they would assess right away.
*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Palm,
The area is still very active, healing and all. There is also internal swelling and such that has not gone down. My doctors check the area physically (poking and prodding) but want to wait for the CT. They have told me to let them know if anything unusual comes up, pain or lump or something, but if not they seem to be happy to wait. My CT is scheduled for next month almost 6 months out.
Keep in mind that my location is the soft palet and they can get at that area fairly easily and I have no complaints.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Palm,
Inflammation will "light up" in a PET. Generally, they wait a few months post surgery before doing a PET as the area is still healing and could present false positives.
Good luck,
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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