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#114555 03-25-2010 09:12 AM
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Carol L Offline OP
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I am trying to make a thread about what is happening to me and my 3rd new primary tumor diagnosed yesterday.....any help?


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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Carol L Offline OP
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If I am where I should be and I hope that I am, I had a biopsy taken last Tuesday and was called in yesterday and told by my oral cancer surgeon that I have cancer again. It is behind the flap but towards the back of my tongue. It will be hard to reach. He will probably split my jaw again and maybe remove two back teeth to get to it. I have had radiation and cannot open my mouth very wide. I will have a petscan and am scheduled for surgery on 4/16. Thanks for listening......and yes, I am dreading it and am afraid. I totally trust my doctor and he said he believes he can get it, so I am better off than I could have been. Thanks!


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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Carol,
I am so sorry to hear you have to do this again. I am glad to hear that your doctor thinks he can get it all and hopefully this will be the last time you have to deal with it. Please update your signature so people know what your previous diagnosis and treatments were. Click on MY STUFF at the top and then profile and fill the inforation in the signature section. Remember to save it.

Keep us posted on the results of your pet scan.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Carol L Offline OP
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Thank you Eileen!


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
Joined: Jan 2004
Posts: 1,116
Carol L Offline OP
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Jerry, help me....trying to start a new threat about my latest with oc. don't think I did it....Thanks! Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
Joined: Jan 2004
Posts: 1,116
Carol L Offline OP
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not threat, that is thread


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
Joined: Jun 2007
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Administrator, Director of Patient Support Services
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Carol, Im very sorry to ready you must go thru this yet again. I know right now you must feel like you are in panic mode. You must be so scared. I know when I was told I was sick again, I thought I was done for. Here I am almost a year later doing great!!!! If I can do it, anybody can including you.

From what your signature shows, it looks like you have a couple weeks before your surgery. Start getting everything in order. Being busy will help pass the time. Surgery is usually much easier than going thru radiation. You will get thru this and move on.

Be brave!!!!! I know its so hard right now, but it will be ok. Many people have successfully gotten thru having cancer 3 times. Sorry you have just joined the 3-timer club.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Carol,

You are here in the right place and the thread is fine.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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"OCF Canuck"
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Carol: Christine is certainly a shining example that sh** happens, we deal with it, and we go on. You can do this. I am sure right now you feel overwhelmed, but you CAN do this, and we all are here to help you.

Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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"OCF across the pond"
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Hi Carol
i am so sorry to see you back here again but its still a great place to get the support you know you will need
love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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