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#113463 03-02-2010 04:54 PM
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Joined: May 2009
Posts: 1,412
I have had the chance to do a lot of thinking and praying. I just want all of my OCF buddies know that I am no longer going to let cancer steal my joy. I am taking my life back and declaring war. I was able to eat some pudding today for the first time and it went down. Took awhile, but it went down. I am declaring myself cancer free until they tell me otherwise and I am getting on with my life. My goal is to be able to get this PEG tube in a month right after my PET scan March 26 says all clear. I am going to begin enjoying life again. It has taken enough from me, well today I am done allowing it to take anymore from me. I am going to be here to support others in their journey as I have been helped. This place is a true blessing and I am forever greatful.

Last edited by walknlite; 03-02-2010 05:05 PM.

Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Sep 2009
Posts: 126
Senior Member (100+ posts)
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Joined: Sep 2009
Posts: 126
You go girl! I love you fight and determination. I only hope that if I have a reoccurrance that I can muster even a portion of your strength and resolve.

Sharon


Sharon, 57; Hard Palate; T1, High Grade, DX 6-12-09, Surgery, maxillectomy 7-14-09, 33 RT (9-2-09 to 10-19-09); Prothesis (obturator). None smoker, non drinker.
wheels #113479 03-02-2010 07:07 PM
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Posts: 10,507
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Administrator, Director of Patient Support Services
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Nice to see you being so positive!!!! Congrats on your eating accomplishments. Wishing you continued improvements in all areas. Be well smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2005
Posts: 2,219
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That's what I call a great ATTITUDE!!!!


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
Joined: Jun 2007
Posts: 5,260
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Posts: 5,260
Now that is the Angelia I have grown to know and root for. Now you are like me,. The hell with OC,, I am the boss and it;s just a hindrance.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #113625 03-05-2010 09:53 AM
Joined: Nov 2009
Posts: 396
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Joined: Nov 2009
Posts: 396
go get em tiger!


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
Joined: Aug 2005
Posts: 307
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Posts: 307
That's the spirit Angelia!!!

Hugs,

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Joined: Sep 2009
Posts: 618
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

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Posts: 618
Hey Angelia,

Tapioca Pudding was one of the first things I was able to get down after the radiation. It's good to see you eating again. It won't be long before you graduate to more complicated foods. Before you know it the list of foods you can't eat will be dwarfed by the list of those you can.

It is great to see the fire in your belly heating up in more ways than one.



Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
Joined: May 2008
Posts: 357
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Good for you, Angelia!
I'm in awe of you, & I'm adding your name to my list of OC heroes!

Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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Thanks. Sorry I have not been on in awhile, but my family and I took a vacation. Have PET scan april 5th. I am not anywhere close to eat many solids. I have tried mashed potatoes and it just burns my throat. I can do some jello and things that just slide down. They have to be very moist. Still have the PEG and still using it quite a bit. I have moved on and I do not think about cancer all the time. I did get a call from a gentlemen who is trying to start a support group here in my town asked me if I would be interested in helping out. I jumped at the chance. Anyway I may be beginning a new journey in helping others face to face with this stuff. I will certainly spread the word about OCF.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12

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