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beeboppin5 #113298 02-28-2010 07:47 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Joined: Mar 2008
Posts: 3,082
Barb

For what it is worth, I had the same surgery a year ago PLUS additional Cyberknife radiation and second round of chemo, yet after speech therapy, I can talk as long as I do so SLOWLY AND ENUNCIATE EACH WORD. I put that in caps, because while I chafe at these restrictions, perhaps speaking slowly and extremely very distinctly would work in your line of work.
Actually, a lot of former colleagues have indicated that my former machine gun pace and verbal pyrotechnics made it hard for them to fully understand me. They actually prefer the "new normal".
The key is exactly as Brian posted: Treat this as a new challenge and get good speech therapy. First you have to beat this cancer. keep the faith
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #113322 03-01-2010 06:10 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
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Barb,

Probably asked this before but why are you opting for this surgery? Why won't radiation do the job for you?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Brian Hill #114153 03-15-2010 09:09 PM
Joined: Feb 2010
Posts: 38
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Joined: Feb 2010
Posts: 38
Thanks Brian for the elephant story. Makes me hungry...:)Has ben one week since my partial glossectomy and I am healing well. The swelling is intense as they had to cut my neck open to get out the lymph nodes....all clear. I have had lotsa time to sit and think about the future and am giving to what happens will work out. I don't know much about the radiation therapy, but will talk to those folks in the next few weeks. I will beat this, I know. With the tumor gone, I am looking forward to irradicating any pesky wanna be's. And thank you for this website. There was so much information and support in the words of these people, that it made the surgery less scary. I hope to help others as they journey the course to recovery.
Barb in Colorado Hospital


Teacher aged 48, SCC Left side and floor of Tongue, Dx December, 2009. Stage II T2 N0 M0 Successful partial glossectomy surgery with thigh flap and neck dissection 3/8/10. 6 weeks of radiation tx ended 6/30/10. Happily surviving!

"Get outside every day. Miracles are waiting everywhere."
beeboppin5 #114273 03-19-2010 05:22 AM
Joined: Sep 2006
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Barb,
Great that your surgery is over and you're recovering well. I had about 1/3 of my tongue removed and the free flap reconstruction 3.5 years ago, and am doing great. I am happy to answer any questions.

Blessings to you and your family.


10/2006 SCC of tongue, 2cm+ (T2)No node involvement or metastases; Resection approx. 1/3 of tongue, free flap reconstruction and MRND (lymph nodes removed) on 10-11. No cancer in lymph nodes - No further treatment recommended at this time. 3.5 years cancer free.
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