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ESikon #113096 02-24-2010 05:43 PM
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Posts: 3,082
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Wow - how nice to hear from you all. Today we saw the ENT surgeon and she confirmed with a visual examination and hands on palpitation the good news of the MRI. Even better, she cleared up that my "one year" period started at the surgery and not the clean up Cyberknife so since tomorrow is one year since the surgery, I have finally gone one year without active Cancer. First time in three years !!
In anticipation of the good news, I packed a can of Jevity, a cup and a syringe so I could take my wife out to a celebratory lunch in Georgetown at one of our favorite Indian restaurants, where she had delicious tandoori oven baked eggplant all curried up over rice with onion kulcha bread. Then we stopped off at a upscale consignment place next door and got a designer handbag (PETA friendly)for $15 on sale. To top it off, as I was about to put money into the parking ticket dispenser, a man pulled up in the street, honked and gave us his which still had an hour left on it. He liked my black Aussie hat with the full length Western black duster.
And like the excerpt from the OCF news feed on Roger Ebert I posted in the coping/anger forum, it was a pleasure to watch my caregiver wife eat her meal while I discreetly syringed my Jevity.
So yes, Seda and all the other new comers, there is HOPE even if you get a recurrence - something that our OCF posters demonstrate each and every day.
Charm

Last edited by Charm2017; 02-24-2010 05:45 PM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #113101 02-24-2010 06:12 PM
Joined: Sep 2009
Posts: 618
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 618
Charm,

Charm,

You are now officially in my "what a guy" category. I have been eying a duster for months now to go with my fedora. As I am a huge BSG fan (Google home page) your support of the finer arts was already appreciated, the duster just put you over the top.

Congratulations on the 1 year. Next time you get a chance you should buy something nice for yourself, although I very much understand the concept of; the wife comes first.

Kelly


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
Kelly211 #113138 02-25-2010 07:25 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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GREAT NEWS Charm!!!

I'm a tad surprised you didn't tell us that you had a celebratory syringe of wine?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #113142 02-25-2010 07:43 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
David

It was actually a nice 22 oz bottle of Taj Mahal beer from India. The beer is a little trickier than wine due to the carbonation but the key is judicious application of a napkin over the syringe tip while moving between glass and feeding tube.
You know me too well
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Kelly211 #113144 02-25-2010 07:49 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Kelly

Thanks. I think I posted some time ago that the duster was actually a reaction to the uber expensive Burberry et al topcoats that the consultants all wore to my meetings with them when I was a government attorney. There was no way to compete with their bespoke suits and pricey rainment (plus I had zero desire to do so) but striding into a room with that full length black duster and outback black hat, all made out of oil cloth burnished my "hired gun" image as I stood steadfast against their attempts to hijack my office's independent IT shop.
thanks for the kind words. BTW, I was fully prepared to hate Caprica but now I love it. Hmmn, guess which kid character grows up to be an Admiral?
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #113147 02-25-2010 08:09 AM
Joined: Dec 2008
Posts: 126
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Dec 2008
Posts: 126
Charm,

I want to add my Congratulations for your wonderful news! You must have such a sense of relief. On Tuesday, it was 1 year since Richard finished his treatments. It feels like a big milestone. I'll never forget all the support from this forum and you are a big part of all of it. Do you have any exciting plans for the future? Geri



Geri-CG to husband Richard, 62 yrs old. Former smoker, quit 30yrs ago, light drinker. Dx after tests with BOT T1N1M0. Tx to start by end of Dec. Seven wks IMRT with 2x Cisplatin-2x Erbitux. Peg in 12/08- removed 4/21/09. Looking good so far. Clear Pet &MRI 8/2/09
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