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caths #112749 02-19-2010 06:36 AM
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fantastic news charm! congrats!


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
caths #112753 02-19-2010 06:43 AM
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Wonderful Charm!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #112796 02-19-2010 06:37 PM
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Thanks everybody. It's the same story that DavidCPA tells on how he went through 5 doctors. As the Miracles sang in their hit 1960 single:
[quote]My mama told me��you better shop around�
(Shop, shop around) a-whoa-yeah
You better (uh-huh) shop around!
(Shop, shop around)
Uh-uh-uh[/quote]
I did write a cover note to the reviewing radiologist setting forth my request and my concerns over the prior MRI "findings".
So I think it's a combination: they will give a detailed report addressing your concerns provided you ask. Georgetown Hospital just disregarded my similar request when they did their MRI. I know where I'm getting my MRI's done from now on.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #112797 02-19-2010 06:41 PM
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Yeah, Charm, you keep kicking a**!


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Charm2017 #112805 02-19-2010 10:30 PM
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"OCF Canuck"
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Awesome results...keep on keeping on!

Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Charm2017 #112881 02-20-2010 11:35 PM
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Wonderful news Charm!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
caths #112895 02-21-2010 06:20 AM
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Congrats on the wonderful news!!!! You are correct with not wanting to hear those awful words for a third time. Wishing you many more good scans smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #112900 02-21-2010 08:18 AM
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Charm,
Great news and good work on your part in getting a straight answer.
The radiologist reading the results uses a standard report to cover all possibiliteis. It is up to the doctor to sort it out. In the meantime we can go crazy from the sometimes frightening, sometimes vague and often unintelligble jargon. As a veteran of many tests,x-rays and ultrasounds I feel that the worst scenario is to get a letter with the recommendation to check with your physician. I much prefer having the doctor let me know what the findings are and discuss what should be done next. The reports are good to keep for one's records and as a point of reference when talking with the doctors.
I recently had the annual CT for my kidneys. Since my 1st CT the doctors had been monitoring a small spot which now seems to have changed shape and gotten smaller. The resident came in and said the radiologist recommended a 6 month follow-up CT based on chages in the kidney which had not been operated on. My doctor came in and said that the spot probably had collapsed. I could have the CT in 6 mo if I wanted, but that given my history he didn't beleive it was cancer and given that unlikely occurance it would be so slow growing thqat another 6 months would not be critical.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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caths #113072 02-24-2010 12:14 PM
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Yeah for you. Gives hope to those of us just starting.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
Seda Bug #113075 02-24-2010 02:09 PM
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Great news Charm!!!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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